Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Can I Go Gluten-Free Post-Blood Test And Pre-Endo?


Sika

Recommended Posts

Sika Newbie

I was eating a gluten-light diet for many months. About 2-3 months ago I had a recurring issue with pain passing stools, blood in stools, etc ... and complete exhaustion and brain fog (which is ongoing for me). I began thinking that perhaps it's celiac so have been increasing my gluten intake prior to the text last week. Which has meant I've been feeling worse and worse. The bloating is unbearable, I really feel like I will pop and have to wear massive tops so I don't get mistaken for a pregnant person. Still waiting for the blood results, and understand I may need a biopsy at some point. I am having a colonoscopy in a couple of months (long waiting lists!).

Anyway - do I need to have gluten in me prior to any biopsy? Or can I begin to cut it out of my diet again?

I bet the bloods will come back negative anyway ... and I'll never find out. I'm getting my mum to get tested too though, and maybe my grandmother - all have the symptoms.

Link to comment
Share on other sites
  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



QuinnT Newbie

I was eating a gluten-light diet for many months. About 2-3 months ago I had a recurring issue with pain passing stools, blood in stools, etc ... and complete exhaustion and brain fog (which is ongoing for me). I began thinking that perhaps it's celiac so have been increasing my gluten intake prior to the text last week. Which has meant I've been feeling worse and worse. The bloating is unbearable, I really feel like I will pop and have to wear massive tops so I don't get mistaken for a pregnant person. Still waiting for the blood results, and understand I may need a biopsy at some point. I am having a colonoscopy in a couple of months (long waiting lists!).

Anyway - do I need to have gluten in me prior to any biopsy? Or can I begin to cut it out of my diet again?

I bet the bloods will come back negative anyway ... and I'll never find out. I'm getting my mum to get tested too though, and maybe my grandmother - all have the symptoms.

Hey,

I found myself in a similar situation. I'd say that because you were "gluten light" for a while, its going to be important to really load up on gluten over time to make sure you do enough damage for them to catch. Otherwise, all that pain and suffering is going to be for naught. My GE says to load up for at least three weeks before endoscopy but most people on these forums seems to think 3 months is more appropriate, and if you've been gluten light/free for a long time, I'd say that three months is probably the wiser option

Link to comment
Share on other sites
ravenwoodglass Mentor

If you are feeling worse and worse with going back to gluten your body is giving you the answer as to whether you need to be gluten free or not. Some doctors are skipping the biopsy when blood tests come back clearly positive and it is your choice whether to have one done or not. If your having a lower scope in a couple of months you can ask your doctor to scope both ends at the same time. Keep in mind that even on a full gluten diet you still have a 30% risk of a false negative so do give the diet a good strict try after the procedure is done.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,461
    • Most Online (within 30 mins)
      7,748

    T.B.
    Newest Member
    T.B.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • LimpToeTheTimeless
      I am M 21 and I diagnosed myself after a week of fasting and slowly reintroducing stuff in my diet except gluten, I had terrible eczema scars ,dandruff and brain fog, now I am free after 6 years of just pain, I am 6'2, will I grow taller? And since I am a gymnast will my muscles grow like quicker, cause before no matter how effort I put in I just couldn't. 
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
×
×
  • Create New...