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Vegan With Celiac & Other Sensitivities-Help


NewToGlutenFreeLife

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NewToGlutenFreeLife Newbie

I began the elimination diet 2 weeks ago. In addition to my lifelong vegan diet (no meat, fish, eggs or dairy) I also eliminated nightshades, caffeine, sugars (except a bit of agave), peanuts, soy, corn and gluten. I felt weird on the diet but within days lost my bloating, GI issues,body aches and the constant itching in my ears. I also felt cleaner and clearer mentally. Then a Dr recommended blood testing & told me to add back in all the food I eliminated. I began with wheat (asian pasta noodles with stir-fry) and was very ill immediately (diarrhea, passing tons of mucous stools, vomiting, body aches, bloating, and general sense of irritation from mouth to rectum-sorry for details). So I went back to elimination diet & but the symptoms are continuing (except vomiting & the diarrhea is altering with constipation). Now I'm wondering if I should just fast a while...also concerned I may be allergic to something I'm still eating (almonds, cashews, sesame, azuki beans and gluten-free almond butter are my only proteins now). All I had was 1/2 cup of rice cereal this morning (gluten-free organic) and a little hemp milk & I feel bloating & like I'm not digesting. I am back in bed :(


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rosetapper23 Explorer

I can only suggest eliminating ALL grains (including rice) and beans. In reading about how our digestive systems have developed and evolved over time, I've learned that humans simply cannot eat these particular foods. Because you're a vegan, you would probably not consider reading about the primal/paleo diet...but if you're interested in getting to the bottom of what might be causing your symptoms, the book "Primal Body, Primal Mind" is outstanding and deals with the biochemistry involved with eating certain foods. Most of your diet seems to already dovetail with those foods that are eliminated in this type of diet, except for rice and beans, but your diet also lacks some foods that are essential for good health. As with all diets, in order to enjoy good health, you have to both include certain foods and eliminate others. I'm sorry to hear that you're feeling so ill...

mommida Enthusiast

Can you get allergy testing? I don't want to suggest foods or recipes that might make you sick.

One of the things that comes to mind is avacados. High in hopefully good fat and calories and on the list of most non reactive foods. That might be the best thing to search.

NewToGlutenFreeLife Newbie

Can you get allergy testing? I don't want to suggest foods or recipes that might make you sick.

One of the things that comes to mind is avacados. High in hopefully good fat and calories and on the list of most non reactive foods. That might be the best thing to search.

I might do allergy testing next week but since I'm not eating all these foods they might not show correct results...

Thanks for the tip....avocados, yum!

NewToGlutenFreeLife Newbie

I can only suggest eliminating ALL grains (including rice) and beans. In reading about how our digestive systems have developed and evolved over time, I've learned that humans simply cannot eat these particular foods. Because you're a vegan, you would probably not consider reading about the primal/paleo diet...but if you're interested in getting to the bottom of what might be causing your symptoms, the book "Primal Body, Primal Mind" is outstanding and deals with the biochemistry involved with eating certain foods. Most of your diet seems to already dovetail with those foods that are eliminated in this type of diet, except for rice and beans, but your diet also lacks some foods that are essential for good health. As with all diets, in order to enjoy good health, you have to both include certain foods and eliminate others. I'm sorry to hear that you're feeling so ill...

Thank you for your tips. My spiritual beliefs prevent me from eating animals. I have been doing better- adding probiotics, homemade almond yoguart and ferments foods has helped.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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