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*charliesmum*

My 2Year Old Getting Tested

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Hi, new to the forum. Just joined for a bit of support and advice really. From the beginning...my son started with reflux symptoms (irritable and vomiting small amount up to 30 times a day) but after that subsided at around 8months he still wasnt gaing weight and height at a normal rate. Started seeing a peadiatrican and just before the 2nd or 3rd appointment it just hit me that Charlie might actually have coeliac disease. My dad has it (wasnt diagnosed until his late 40s) and Charlie had all the classic symptoms (bloated tummy, wasted arms, short and under weight, fussy eater) so he I asked if this might be what he had and they did blood tests straight away. After a 4 week wait they eventually came back as suggestive of coeliacs. He sees the gastro specialist on 30th november so just waiting until then really. He will most likely need the biopsy (dreading it). Im thinking about getting tested to, is this a good idea?? Does anyone know what the chances are that i might have it too and should I get my daughter tested??? Thanks :)

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You might want to consider getting tested. First degree relatives have a higher chance of getting the disease. From what I've read it's 1 in 20, versus 1 in 133 for the general population. And since your dad has already been diagnosed, you probably carry the gene even if you don't have full blown Celiac Disease. There's a chance you daughter could have it too. You may want to get her tested. Some people have "silent Celiac" where they show very little symptoms but there is still damage to their intestines.

I don't say all this to scare you. I know how scary it is to think about your children being tested, especially with a biopsy. My son gets his blood test on Monday. I think it's harder for me to get him tested that it was to get myself tested.

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Thanks for the reply :)

I have never really had any symptoms myself until the last few months although I have always had trouble with mouth ulcers ever since I can remember. In fact I hardly have any time mouth-ulcer-free!!! The other symptoms have been fairly recent such as losing weight but eating well and stomach cramps. They might just be something unrelated but it has made me think I might have it too...think I will see my GP this week.

My daughter has no symptoms at all or not that I have noticed.

Now thats Charlie's bloods have come back suggestive, is it possible he might still be negative for coeliac or is that just wishful thinking? There seem to be too many factors for him to be negative now :(

I would just really like to get the biopsy done and get him on gluten free diet asap so he will start growing normally. Hes 2 next weekend and the size of a 13/14 month old.

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