My Personal Experience Guide

[tama-chan]

I wrote down my current experiences and am bringing this to my doctors on Wednesday, but wanted to show you guys to see if you could get some idea as to what is going on with me. I am scehduled for an endoscopy in Oct 4th, but I cannot wait that long to help myself. Thanks everyone for listening!:

Problem: Painful intestinal problems, from the upper abdominals to the lower pelvis. Pain is normally random and can be from mild agitation to extreme. Never goes away, and is with me every hour now. Pain started around February and increased every month. Since then I have had to use the bathroom more at work to dispose of the wormy mucus that comes out of me, have gotten less sleep, Have not had a single hour where I feel absolutely no pain in that area and have had bouts of stress.

Facts:

1. Wormy/stringy mucus comes out of me every time I use the bathroom now. Sometimes when I don’t even pass a stool, I use the bathroom and the mucus comes out along with gas.

2. I pass excessive gas every 15 minutes or so.

3. Constipation seems to be sporadic. Sometimes I’ll have difficulty passing a stool, while other times I don’t.

4. I normally use the bathroom about 5 to 10 times at home, with a time allotment of 10 to 30 minutes. At work I need to use the bathroom at least 4 to 6 times.

5. I am always awaken after my sleep by the gut pain, and have not slept a straight 8 hours in months and months

6. I have heartburn from time to time every week

7. I choke on water 30% of the time I drink it, even if it’s drunken slowly

8. When I attempt to get back into my exercise routine, the more I exercise, my bowels will move more and I’ll need to use the restroom, but all that comes out is lots of the mucus/wormy stuff. And after I relieve myself I will still have the pain

9. Once usually every day during my work hours, the pain will get so bad that I will literally need to grab onto something so I don’t pass out. Fatigue sets in for about 20 minutes until I can catch myself

Personal notes:

To me the strangest symptom is the stringy wormy things that come out of my intestinal track. They come out almost every time I pass wind, and there is a lot of it.

I have had:

1. Colonoscopy (They found nothing of concern)

2. Celiac Plus Blood test (they said I have the correct genes for celiac, but blood was undetermined)

3. Upper Gi Tract (they watched my digestive system, and it seemed to go down fine)

4. I had tried going on the lactose free / celiac free and IBS diet for one full week (seven days) each. I was told by my specialist that those would be enough.

Conclusion:

Taking everything into account (including the test performed) I either have some type of virus that has not been ruled out (due to wormy things coming out of me every time I use the bathroom), or all the symptoms are pointing to a deadly case of an intolerance to something that is literally destroying myself.