Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What Kind Of Doc To Test Food Intolerances?


ucemmy22

Recommended Posts

ucemmy22 Newbie

Hi! Newbie here!

My question - what type of doc should I go to if I suspect food sensitivities / intolerances? Allergist? Naturopath? Etc.

History: As a kid (6?), I had food and asthma issues. I was young, and my mom doesn't have all the info on doctor, etc - but I had skin prick tests done, and lit up for wheat, eggs, milk, cane sugar and beet sugar. My parents took me there because of behavioral issues. Did a 1-2 year rotational diet.. and that was it. No followup. Asthma was then relieved by a naturpoath. No issues now! In fact.. now a marathon runner!

Fast forward - irritability and anger came during the teenage years... put on Prozac. Helped with that, and ended up being on it for 12 years. The irritability and eventually mild depression kept me on it.

Now 25 years old, am tired all the time. (came off prozac a couple months ago - really don't think i need it. feel fine without it) Always thought I was just a "really good sleeper and napper" - but the teenage years are over. Weekends are 12-18 hours of sleep a day. During the week, my husband has to drag me out of bed.. I snooze for an hour before work sometimes.

Doc ruled out thyroid and iron. Had a sleep study - very mild hypopnea (AHI of 6,5-15=mild), average to above average time spent in the restorative N3 sleep, and average sleep onset of 5.4 minutes across my 5 MSLT naps. Ruled out narcolepsy. Thus, doc gave me the diagnosis of "idiopathic hypersomnia". Which.. to me, seems like a cop-out. People aren't this tired for no reason.

Been thinking all this could be due to food issues that had plagued me in the past. Fatigue/anxiety/irritability/dull headaches/1-2 loose stools a week / very inconsistent bowel movements (sometimes only every 3-4 days).

I want to investigate this issue. Where should I turn? I see kits you can buy online... blood tests.. fecal tests.. naturopaths... allergists.. etc.

Help!

Thanks!

Emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I do not believe there is one doctor and certainly no test that can pinpoint each food intolerance if this is your problem.

After 25 years of misdiagnosiis, doctors telling me my symptoms were stress, hormone or depression related I was dx'd with celiac. I did not improve gluten-free - in fact I became much sicker until I eliminated every possible intolerance via eliimation diet with strict trial.

Perhaps others can offer different solutions?

Good luck to you.

Juliebove Rising Star

We have used naturopaths. Allergists usually don't seem to believe in intolerances.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...