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Lots Of D - But Antibodies Normal


plumbago

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plumbago Experienced

All,

I am posting on behalf of a colleague at work, who for the last eight months has been suffering through constant - 4 times a day - D and lower abdominal pain (hypogastric region - not inguinal). This pain often wakes her in the middle of the night. She is young, mid-20s.

There is a family history of IBS. She recently went to the gastroenterologist who scoped her large intestine. What the dr found was nothing that worrisome - no polyps, no outward indication of inflammation, just very mild redness, though a biopsy will indicate anything more, results not back yet. This exam also revealed interior and external hemorrhoids - but she and I are thinking that is because of the constant D. At any rate, I do not think the hemorrhoids would explain the D and the abdominal pain.

Other: She had a Celiac workup done 10 days or so agao (I am not sure of the exact tests), and her antibodies were not high. They were fine. Her absorption of vitamins is good. Most other indicators on the blood tests were fine.

She is slightly - slightly - sensitive to milk, she says. So she does not drink it alone, but if a brownie has it or some other food has milk as an ingredient, she will eat it.

The last time she had a solid stool was many months ago. Nevertheless, she gave a sample to the gastroenterologist (I'm not sure what they would be searching for), and is expecting the results back within the next week or so.

I myself have not researched irritable bowel. She is terrified that this is what it is because there's nothing you can do about it, she says. I'm not so sure this is true. There must be a cause, is my thinking.

That's most of what it is. I so appreciate your reading this and any thoughts and ideas you may have.

Sincerely,

Plumbago


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gluten free overseas Apprentice

I am sorry to hear about your friend. Even though her antibodies came back normal, she could try going gluten free to see if it helps. Has she visited a tropical or humid climate or lived somewhere like that? Tropical sprue has the same symptoms as celiac but is not caused by gluten. It's when an overgrowth of bacteria wrecks your intestines, basically. It often happens when a person has lived or visited humid climates and eaten a lot of hawker food. I am not sure how they treat it, but I think antibiotics and stay off sugar and yeast and foods that cause bacteria to grow rapidly. I wonder if a stool sample would show if there is a gross overgrowth of bacteria.

I hope your friend does not give up and will keep pounding the pavement until she finds an answer. That's so tough.

everything-free Newbie

I would be helpful to search up Irritable Bowel Syndrome(IBS), I found a great site written by doctors at the Mayo Clinic that may give her some good information. There are links at the bottom of each description to lead you to the next important page. Open Original Shared Link

Unfortunately for you're friend there is very little that can be done about IBS, if that is what she ends up being diagnosed with. There are a few pills that can be prescribed but only by specialized doctors (there is a list on the site I suggested), and as far as I am aware you need to have either D OR C, not both, for them to work properly, so they may work for your friend.

I am in my early 20's and was diagnosed with IBS over a year ago, but my symptoms vary a lot and none of these pills are a good option for me. I've tried fiber supplements like Metamucil, and then stool softeners at other times and both of these have just made the D, C, and cramping worse. After having an endoscopy I was told that I was lactose intolerant. I have also noticed a large difference in my symptoms since going gluten and potato free over six months ago, and sugar free a month and a half ago. Alcohol and not getting enough sleep (I need about ten hours a night and even then I never feel rested) are also big triggers for me and make my symptoms extremely worse and because of all of this, having IBS has impacted my social life. I still go to the bathroom regularly, on a good day twice a day, sometimes up to 5 or 6, and the bloating pain has not completely gone away but it has gotten better.

This may be another option for you're friend, the elimination diet, as stated above. A lot of people with IBS have a problem with gluten and/or lactose, as well as many other GI irritants. The struggle is finding out which ones irritate different individuals. IBS is not something that can be cured, you need to learn how to manage it and figure out what are you're bodies triggers and what is safe for you. Most people find exercise helps to relieve some symptoms.

Hopefully something will show up on one of your friends tests to say that she has something other than IBS, that can be treated a little easier, since it is difficult altering your lifestyle just to manage your symptoms, let a lone get rid of them.

Best of Luck! :)

plumbago Experienced

Thanks for the two replies so far! I hope to get more.

It's especially good to hear from someone in the same age group.

Plumbago

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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