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Do You Get Symptoms After Eating Casein?


GFreeMO

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GFreeMO Proficient

I had a gluten type reaction to eating casein. Is this pretty typical with a casein allergy? It was almost exactly the same as the gluten reaction except the pain was lower and didn't last as long.

What are you casein reaction symptoms?


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Bubba's Mom Enthusiast

I had a gluten type reaction to eating casein. Is this pretty typical with a casein allergy? It was almost exactly the same as the gluten reaction except the pain was lower and didn't last as long.

What are you casein reaction symptoms?

I cut out dairy for a while because it seemed like I was getting gluten somehow, but I was sure I wasn't. Someone here told me to go dairy free and see if it helped. It did.

A couple of days ago I used butter on a sweet potato. I got a reaction similar to my gluten one, but milder.

Hyper, refux, didn't sleep that night, followed by loose stool the next day. Got an earache too.

I know I still have a lot of healing to do, but I'm beginning to think I may not get back dairy? :(

Jetamio Apprentice

For me, I gave up dairy before I figured out gluten but it definitely affects me. I get terrible gas and belching (sorry, TMI) and my heart rate increases. I get congested and ache all over. And it lasts for three days or so. Similar to my gluten reactions but not nearly as many symptoms. I am hoping to get at least a small amount of dairy back. It would be nice to have a little cheese or ice cream once in a while. We'll see....

GFreeMO Proficient

Thanks for the responses. It's obvious that I need to avoid dairy. Thankfully we have rice milk and those kinds of things. Not the same I know but better than nothing. If I could just find a soy free, corn free sub. for butter...

Juliebove Rising Star

Gas and the big D for me.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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