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Peripheral Neuropathy?

AnnieInItaly

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AnnieInItaly Rookie
AnnieInItaly
Posted

This week I am getting the blood work done to see if I am celiac, but I won't be able to see a specialist until mid-November. It would certainly account for all my weird medical issues over the past ten years that doctors haven't been able to explain. But, there is one symptom in particular I want to ask about, as it will be quite a while before I will be able to get in to see the specialist. For the past 8 years I occasionally undergo spells (usually lasting 4-24 hours) where my extremities become weak to the point of temporary paralysis. Doctors haven't been able to figure it out, it is like periodic paralysis but my potassium levels are normal. From what I've read, this could possibly be caused by celiac, right? I've read that peripheral neuropathy can occur, but I'm not sure if this is what I'm experiencing. When it happens, it is often in conjunction with a low blood sugar episode (I have reactive hypoglycemia), and in addition to the loss of ability to move I have trouble talking, my words come out as slurred nonsense sounds. I lose some sensation, but not much, usually I just can't move at all, and I'm exhausted and weak for a day or two after. Is this what peripheral neuropathy is (or something else gluten related), or is this something else?

Thanks!

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1desperateladysaved Proficient
1desperateladysaved
Posted

Wow! Something like that happened to my brother. He couldn't get out of bed for 3 days when he was in his 20s. The doctors said that it was just fatigue, but I haven't been able to believe it.

I suffer from hypoglycemia too. I hope your body will get to obsorbing things better.

DT

frieze Community Regular
frieze
Posted

This week I am getting the blood work done to see if I am celiac, but I won't be able to see a specialist until mid-November. It would certainly account for all my weird medical issues over the past ten years that doctors haven't been able to explain. But, there is one symptom in particular I want to ask about, as it will be quite a while before I will be able to get in to see the specialist. For the past 8 years I occasionally undergo spells (usually lasting 4-24 hours) where my extremities become weak to the point of temporary paralysis. Doctors haven't been able to figure it out, it is like periodic paralysis but my potassium levels are normal. From what I've read, this could possibly be caused by celiac, right? I've read that peripheral neuropathy can occur, but I'm not sure if this is what I'm experiencing. When it happens, it is often in conjunction with a low blood sugar episode (I have reactive hypoglycemia), and in addition to the loss of ability to move I have trouble talking, my words come out as slurred nonsense sounds. I lose some sensation, but not much, usually I just can't move at all, and I'm exhausted and weak for a day or two after. Is this what peripheral neuropathy is (or something else gluten related), or is this something else?

Thanks!

dont think is PN, sounds more like a seizure of some sort.

AnnieInItaly Rookie
AnnieInItaly
Posted
  • Author

dont think is PN, sounds more like a seizure of some sort.

I've been tested multiple times for seizure disorders, but apparently I am seizure free (even though I have a few family members with seizure disorders). I don't lose consciousness at all, I'm alert enough, I just can't communicate or move much when it happens.

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