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  1. Don't be afraid to self advocate for yourself!
  2. I too am over the lack of compassion with physicians not listening. I know there are great ones out there but apparently those aren't educated in rare diseases like DH. I have another urological condition called VUR that is typically outgrown by the time you are 12 y.o. I, however, did not outgrow...
  3. I've been taking hemp extract oil orally for a few months to calm my nerves during this pandemic. I just put a drop on an active DH rash and it gave some immediate relief. I also have a hemp extract lotion but that didn't seem to provide as much relief. The oil probably has more of a concentration...
  4. I am not the OP but thanks for acknowledging that it is ok to not have a formal diagnosis. I struggle with this as I refuse to eat gluten for the tests. The saddest part to me is that I had to suffer for a year with this because no doctor had any idea of what it was. I wish I had found someone...
  5. I too am undiagnosed with DH. But I know that is what it is. I went to so many doctors about this rash and they just kept prescribing steroid cream and all ignored me when I told them I thought it was related to something I was eating. I went to an acupuncturist at the recommendation of a friend...