April in KC

Vitamin A deficiency can cause skin bumps almost identical to keratosis pilaris. Night blindness is another symptom of vit A deficiency.

Marcia, I haven't tried salt loading, but I'll read up on OI and salt loading to see what it's about. My orthostatic hypotension is really minor...it happens a lot, but usually just causes me to feel funny and lose vision for a little while. I've noticed that inhaling/exhaling restores eyesight...

Ding-ding-ding! Vitamin E was probably WHEAT germ oil.

Hypoglycemia and hypotension are worth checking out for the original poster...but I don't think they're the cause of my similar incidents. I do have occasional bouts of hypoglycemia, but the sensation is not quite the same for me. When I'm hypo, I feel lightheaded, shaky and very weird - but...

The first year I was gluten free, "sleep attacks" or "narc attacks" (as a friend calls them) were a VERY common experience for me - always after eating, so the suspected cause was accidental glutening. Typically, I would start to feel sleepy 15 minutes to 1/2 an hour after eating. It would...

Oh, I am sooo sorry. When I get CC, I get GI symptoms, but I do not throw up. I do have DH, and we're supposed to have milder GI symptoms. My youngest son did throw up cereals violently when we tried to introduce. But since being gluten-free, he's also been puke free. I assume that he's...

Okay, Jules...I posted it in the Main Discussion Board over at www.kidswithfoodallergies.org. I think you should be able to read posts in that forum without signing up...so you can keep an eye on what people are saying. I don't believe you'll be able to reply, however - so let me know if...

Another thought - if you don't want to pay to join KFA (since you won't be a longtime user), you can give me permission to reproduce your first post here over there on a forum (I'm a member). You can either reply to this thread and let me know, or PM me here. Over there, I just read a thread...

Jules - another thought...you might try posting your question at KFA, www.kidswithfoodallergies.org. There are so many members there whose kids are on feeding tubes for various reasons...some even have rare genetic conditions...so you might find someone who has ideas we haven't thought of yet. ...

Hi again - I'm the mom who posted about EE and EGE. Have her vitamin levels been checked? Some vitamin deficiencies have "anorexia" as a symptom - lots of them, actually. I think if you look up vitamin deficiency symptoms for different vitamins such as B vitamins, you will find at least 5...

You have some good replies. An additional possibility... Some kids with eosinophilic disorders also do this (lose interest in food, or refuse it)...eosinophilic esophagitis (EE) and eosinophilic gastroenteritis (EGE) can co-exist with Celiac Disease (my son has both Celiac and EGE). Eosinophilic...

If she also suffers from a lump in her throat or feelings of food being stuck in her esophagus at times, ask them to test her for eosinophilic esophagitis and eosinophilic gastroenteritis. These used to be considered uncommon diseases, but now they are diagnosed more frequently. My son has both...

Anna, I don't know if I have narcolepsy or not, but I have major "sleep attacks" when I get glutened. From childhood on, i have some mild to moderate differences in the way I handle sleep that have led me to question whether I have a form of narcolepsy. I used to experience sleep paralysis during...

About your spices question, you could investigate whether there is a food buying cooperative in your area. It's when a group of buyers get together and buy directly from a group of food manufacturers rather than using a store as a middle man. Some in the states and Canada are very well organized...

I have been mildly glutened by what I suspected was garlic powder before. I was never sure. But I did switch brands. I currently use "Simply Organic" brand garlic powder...no issues with it. Is your child dairy free as well? If not, keep in mind that any time she is glutened (i.e. the incident...