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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    People use Necator americanus hookworms for Helminthic Therapy. They are well-behaved and actually use very little blood. In addition, the modern standard is to use very few hookworm larvae, usually starting with just 5. I've never noticed mine. I do notice all the gluten products I now get to eat and the absence of colitis. Plus, living in fear of other...
  2. dixonpete
    The test where I was below 0.5U/ml was the one specific to celiac disease, TRANSGLUTAMINASE IGA ANTIBODIES, so I'm pretty sure I'm good.
  3. dixonpete
    A lot more than two slices of bread per day. Probably the equivalent of 3-4x that with all sources considered. My GP said the numbers were fine.
  4. dixonpete
    I finally got that ant-TTG result back. 2.8. Apparently for that test there's no concern unless it's over 4, so looks like I'm ok.
  5. dixonpete
    Nope. I restarted May 24th, 2022, and reinoculated Oct 21st, 2022. I'm currently on a 2x a year schedule, spring and fall. Hookworm larvae don't fare well in the winter, so it's important to get doses in before the temp drops. I suppose people who need to inoculate more frequently must self-harvest eggs from their stool or live in warmer climes.
  6. dixonpete
    From Covid? Not that I know of. I was left with a partially collapsed right lung but that resolved after a couple of months. I actually caught Covid again earlier this year (rapid tested). It was little more than a bad cold that cleared up in 5 days. Thanks to it being a different strain and 3 vaccines I suppose.
  7. dixonpete
    I saw that. During a period between hookworms in April 2020 I caught Covid-19 when it was really mean. It darn near killed me out of the gate with an over immune reaction that blocked my airway with fluid. By the sound of that article I would have been better off had I been hosting back then. Suffering from IBD carries a broadly increased risk from...
  8. dixonpete
    A physician on Quora listed out all the tests for Celiacs and I forwarded that to my GP. So far I've only had the anti-TTG test and haven't heard back yet the results. Hookworm hosting celiacs in the Helminthic Therapy Support Group have gone through this and have passed those tests with flying colors. I have no reason to suspect my case would be any...
  9. dixonpete
    I chatted up the admins over at the Helminthic Therapy Support Group and their consensus was that the majority of celiac hookworm hosts would be spared the catastrophic reactions to casual gluten exposure, but most of those would probably choose to stay gluten-free because they felt better for it. Only a minority would be like me and become completely unreactive...
  10. dixonpete
    After one particularly painful experience where I tried really hard to negotiate with a restaurant and still got deathly sick, I decided putting my health on the line relying on people who didn't have the same interest as me didn't make sense. I think I ate in one restaurant over the next 10 years after that.
  11. dixonpete
    I figured out I was celiac in June 2008 after two years of increasingly severe illness. Sick many times per day, plus I was dealing with a diagnosed case of ulcerative colitis at the time. Once I cut out gluten the diarrhea stopped immediately, but I was still dealing with mucus in my stool (grossest thing ever) and still too many bowel movements. It...
  12. dixonpete
    Frankly I don't know how much experience he has monitoring celiac patients. I do know he's never asked me about my success in adhering to a gluten-free diet. Not that that's a particular issue anymore. I'll broach the idea to him at our next face-to-face meeting. I do know he's big on flow charts and decision trees in standards of care. There's probably a...
  13. dixonpete
    Not that I know of. Hookworms have a life cycle they have to go through. They are programmed for it. Into the skin onto the lungs where they mature for a week travel up the trachea get coughed down the esophagus land and stay in the jejunum If you swallowed them no doubt they'd try to penetrate the skin in the mouth and...
  14. dixonpete
    It's always a good story to bring up in casual conversation. Especially right now when my entry wound is maximally gross. Actually, it's looking much better now.
  15. dixonpete
    No doubt. The way I look at it an antihistamine capsule made with gluten would have me on the toilet for two hours. Now pretty much every meal I have is loaded with gluten and there's no reaction. But if the TTG test is off I'm sure he'll spring for the endoscopy. Btw, I currently weigh 320. If anything, my gut villi are a little too healthy.
  16. dixonpete
    My GP signed off yesterday on the blood work, but he said without signs of GI issues an endoscopy wasn't warranted. I didn't know celiacs ever went into spontaneous remission. Thought it was a permanent thing. "Physiologically the inflammation and symptoms go hand in hand, so if you’re asymptomatic then there’s likely nothing going on internally." -...
  17. dixonpete
    I never took any chances. Whole foods, no ingredient lists, cooked at home. One time in Toronto I spent 15 min negotiating in a restaurant in Toronto and I still ended up trapped in a subway washroom for a couple of hrs before I felt it was safe to go home. That was it for me.
  18. dixonpete
    Is this for bread or for trying to catch gluten contamination? Considering it only takes a tiny amount of gluten for someone to get glutened I can't really see how this could work. Surely some gluten gets through.
  19. dixonpete
    I'm not inclined to do it. The eggs aren't infectious till they've gone through a couple of molts. Once they've reached that stage though, look out! Here's what my arm looked like on Sunday (day 3). It's better now. In a month there will just be a little redness left. Hookworms aren't for the faint of heart. You have to look at it philosophically...
  20. dixonpete
    The two providers I've bought from are located in Australia. My last spend was $154 US. I used to pay 2X that annual amount on paying extra for gluten-free food. So in a real way you save money. Once you start hosting you can harvest the eggs in your stool. I have a friend in the group that does that. You need a microscope and a tolerance for poop, which...
  21. dixonpete
    I gotta say, for a celiac with probably decades of experience avoiding gluten to deliberately put gluten in their mouth to test reactivity is a mind f***. It's not easy to do. I used to dream all the time about gluten exposures and putting my finger down my throat (in the dream). It's funny how easy you get over it once it's safe.
  22. dixonpete
    I tested for gluten reactivity on day 39 after inoculation, found none, and was on a regular diet the next day. It makes sense to wait till the larvae have matured to their adult form and firing on all cylinders before risking a gluten exposure. You'll find a range of opinion on this topic in the wiki. Some people micro dose gluten over weeks and build...
  23. dixonpete
    Look up The Helminthic Therapy Wiki. There's a provider section with reviews. The guy I use doesn't have a website that I know of, but he accepts payment by PayPal and offers tracking. I email him and then pay him. 11 days later I have my larvae. You have to watch out for the cold though. Shipping larvae in the winter risks ending up with dead frozen...
  24. dixonpete
    The stats I hear is 70%+ of celiacs become unresponsive to gluten when hosting hookworms. I'm on my third batch now. My first experience with them was in 2018. After they died off in 2019 I became celiac again and had to go gluten-free. I know the research results are iffy. Real world experience is different and far more positive. I couldn't be...
  25. dixonpete
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