NotMollyRingwald
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ARCHIVED I'm An Idiot.......i Also Need To Speak Up!
NotMollyRingwald replied to MissyBB's topic in Coping with Celiac Disease
What she said! For example, I'm NCGS and will never get my gums back to normal (they receeded horribly) and my enamel is so far gone its a miracle if I don't have a cavity at every dental visit. I am just past 4 weeks gluten-free again (after gluten trial for EGD), before that I had been "strictly" gluten-free 8 weeks but still had lots of symptoms because... -
ARCHIVED 4 Weeks Gluten Free
NotMollyRingwald replied to Montefisto's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with the above about staying away from the gluten-free beer for awhile. After 4 weeks back on gluten-free diet, I tried Redbridge last weekend and bleeeech! I miss my vanilla porter. Wine it is until I can forget! LOL -
ARCHIVED Battling No Food
NotMollyRingwald replied to UnhappyCoeliac's topic in Coping with Celiac Disease
Amen to that! -
IrishHeart reacted to a blog entry:
Dear Future Amy
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Dear Future Amy
NotMollyRingwald commented on NotMollyRingwald's blog entry in NotMollyRingwald's Blog
Thanks MW! Maybe our angels are playing together in Heaven now. Comforting thought. :) I am really excited, too. Already feeling better, but I know there is much more healing to come! -
ARCHIVED Bad Experience At My Endoscopy Today :(
NotMollyRingwald replied to Miss-Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This has been my experience also. I always require more Novocain at the dentist, and needed extra anesthesia when I had my tonsils out, etc. I didn't realize this was a red head thing! -
GottaSki reacted to a blog entry:
Dear Future Amy
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1desperateladysaved reacted to a blog entry:
Dear Future Amy
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taynichaf reacted to a blog entry:
Dear Future Amy
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I was gluten-free 6 weeks before the blood work, and 8 weeks total before the challenge started. I suppose it's possible that my 4 weeks back on gluten weren't long enough to redo the damage undone by 8 weeks of healing, especially since I was "gluten light" prior to going gluten free for about a year...so many "ifs" and "buts" and "maybes" in my situation...
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Dear Future Amy, I know you are doubting your intolerance/sensitivity to gluten. I'm sure, now that time has gone on, you're starting to doubt the trouble it has caused you. You have forgotten how very miserable your gluten challenge was, and have started allowing the if's and the but's and the maybe's into your mind. So, I'm writing to you now, to remind...
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ARCHIVED Bad Experience At My Endoscopy Today :(
NotMollyRingwald replied to Miss-Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
((((((Hugs)))))) -
Will def keep this in mind! Admittedly, I wouldn't opt to try antibiotics w/o reasonable suspicion of SIBO (am allergic to several and they make me nervous), but if it needs doing, it needs doing!
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Thank the good Lord for that!
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Ugh. This kinda makes me want to bang my head against a hard object. LOL If they cant rule out Celiac and the SIBO tests are only 60% accurate and no reliable testing exists for other intolerances (e.g. Lactose), the only real viable option to determine what the heck is wrong with me is __________? Elimination diet? Give gluten-free/DF a shot and reassess...
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I have considered asking his Ped to test him, regardless. He doesn't have classic Celiac symptoms, (nor do I) but does have there are a few things (e.g. frequent bouts of constipation, bloated stomach, sleep disturbances). I think the biggest hurdle here is my husband "it's just normal kids stuff." UGH. And you are absolutely right, getting back to...
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Just got the word from my GI – the biopsy results are inconclusive. I don’t have a copy of the report yet, but my doc explained there was a small amount of damage to my villi. However, it was not full villus atrophy as would be expected from a full blown Celiac. He believes the damage could be from “early Celiac disease” or it could be the result of a se...
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ARCHIVED Disappointing Endo Results
NotMollyRingwald replied to nosy parker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can understand your disappointment. It's so backward, isn't it? To be disappointed when a disease has been ruled out?? I've begun preparing myself for "normal" results, too...caz, as weird as the normals would think this sounds, I know having Celiac would justify all the pain and suffering, and maybe make me seem less crazy to them. To "only have IBS...