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marciab

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marciab last won the day on March 19 2010

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About marciab

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    Jan 1990 - Virus triggered CFS/ME/FM (URI's, ataxia, myoclonus, orthostatic hypotension, insomnia, swollen lymph nodes, sore throat, brain fog ... ) <br /><br />Sept 2005 - GFDFEFSFCF + chemical free. <br /><br />September 2006 - Ataxia, myoclonus, insomnia are gone as long as I don't get any gluten. <br /><br />June 2007 - Positive for DQ2, Dx Celiac
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  1. Happy birthday and may God bless you today!

  2. I could've written this .. Narc episodes are very different from hypoglycemic. I used to try to sleep standing up. I think the only think keeping me awake was my nocturnal myoclonus (jerking when I'd go into REM). I'm working on my OI (orthostatic intolerance) now too. Sorry to get off...
  3. I used to fall asleep at the drop of a hat and sleep for days on end before eliminating gluten. And when I first went on this diet and was glutenned again, I noticed that I was doing it again. Not so much now, but I'm using DPP-IV nowadays if I think I've been glutenned. It's funny, I get insomnia...
  4. I've been wondering about this too. I have nocturnal myoclonus (jerking when going into REM sleep) and insomnia if I eat any gluten whatsoever. I got glutenned Sunday and was feeling the effects Sunday nite when trying to fall asleep. So, I took 1 Benadryl capsule and within an hour I was sound...
  5. Someone PM'd me about this, so I thought I'd just update it. I'd forgotten how bad this used to get. It still gets painful every once in awhile, but now I just get sharp stabbing pains in that area occasionally. My digestive tract was really torn up when I started this diet in 2005, so...
  6. I've been eating the 85% dark chocolate for a couple of days now and still no "known" reaction. I typically get horrible "D", myoclonus and insomia within 24 hours, but nothing yet ... Marcia
  7. I like the organic Muir Glen and organic Bertolli. I haven't called about them, but so far so good. They don't have soy and Newman's does. marcia
  8. All this sushi talk has me wanting it ... Can you tell me how to make it ? Where do you get your fish so that you know it is ok to eat raw ? Can you use frozen wild salmon ? Tuna from a can ? Where do you buy the seaweed ? I have seen seaweed at my health food store, but it is dry ... hmmm...
  9. Here are the responses I got from Kobe steak house. I wasn't happy with the first one so I contacted them again .. And I'm not happy with either... what do you think ? I've only had sushi a couple of times from Publix (prior to gluten-free, sf, ef, df, cf), so I don't know what to look for. ...
  10. I just called my niece and she told me it was Kobe steakhouse. They have a website so I just emailed them to see if their rice has gluten ... I'll be sure to get back to you ... I didn't realize it was a chain ... marcia
  11. This was not a chain restaurant as far as I could tell. I can ask my neice the name of it, but all small non chain restaurants are going to make things differently. Actually, if you think about it, any chain restaurant manager can change their recipes at any time too. Best to ask always ...
  12. I'm back ... about the chicken broth in the sushi rice, the manager checked with the chef and he said it had gluten it .. I would imagine they cook all the rice at one time in one big pot ... It was a very expensive Japanese restaurant over in Tampa, Fl. The kind where they cook in front of...
  13. I went to a Japanese restaurant recently and asked the manager if the rice was gluten free ... Lucky for me, one of the people who worked in the kitchen was a celiac and was able to tell me that all of their rice has chicken broth in it that was NOT gluten free. They were so accommodating...
  14. Have you tried taking any of the common food allergens (wheat, dairy, soy, corn and eggs) out of your diet to see if one of these is upsetting your stomach ? marcia
  15. I had a similar experience to Jenny. I was diagnosed with Chronic Fatigue Syndrome 16 years ago and told merely that nuerological problems were normal. I had myoclonus, trouble with walking, visual disturbances, headaches and severe pain literally from head to toe. I must have seen 5 different...