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marciab last won the day on March 19 2010

marciab had the most liked content!

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About marciab

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    Jan 1990 - Virus triggered CFS/ME/FM (URI's, ataxia, myoclonus, orthostatic hypotension, insomnia, swollen lymph nodes, sore throat, brain fog ... ) <br /><br />Sept 2005 - GFDFEFSFCF + chemical free. <br /><br />September 2006 - Ataxia, myoclonus, insomnia are gone as long as I don't get any gluten. <br /><br />June 2007 - Positive for DQ2, Dx Celiac
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  1. Happy birthday and may God bless you today!

  2. Yes .. I have a friend who can get by with being CC'd on a regular basis, but when it finally hits, he knows he has to back off all possible gluten for awhile. He appears to be very insensitive to gluten where as I get CC'd / sick very quickly. But, it would be hard to know what extent you've been CC'd if you're eating gluten-free foods since our standards for Gluten free aren't in place yet. Eating out is always a huge risk ...
  3. It could also be a blood glucose problem. http://diabetes.niddk.nih.gov/dm/pubs/hypoglycemia/
  4. A few months ago, I had stool testing for food intolerances by Dianos-Techs and was glad I did. It showed that I getting gluten antibodies still and that I was allergic to egg whites. I'd been making my own mayo with eggs so this was a shock. I thought I was fine with them. It came back positive for candida and some kind of digestive immune system problem too ... Genova is another lab that looks at food intolerances .. does Enterolab look at all that too ? I've finally concluded that I feel better if I stick to the low carb Paleo diet / low oxalate. I was on this and was feeling much better but then around Thanksgiving, because I was feeling so good, I decided to play around with grains, etc .. Now I just have to undo this ...
  5. It could be the fiber in the oats too. I have a few freinds who use oats as a laxative. Flax meal is good for this too. I started on the oats because I wanted to make oatmeal choc chip cookies for a celiac mtg. I used Bob's choc chip cookie mix and this and it turned our really well .. be sure to add some water too. I used 6 tblsp ... Then I just got carried away.
  6. The oats went down really well. They gave me a full calm feeling in my stomach that I'm not getting from the other foods I'm eating. I'm mostly Paleo so I'm mostly eating meats, fruits and veggies. I know I overdid it though ... I've always like the taste of oatmeal. Good tip on the Sunbutter. I have soy issues too but forgot about it when I was eating this.
  7. I wanted to bump this and update it ... I'm still using Himalayan, celtic and Redmond's salt. I really can't say that I've noticed any further improvement in this. I did notice on occassion that if I feel weak, a shot of salt will bring me back to life but so will eating. And I still have to eat every 2 -3 hours. I'm still struggling with chronic hypoglycemia too. I tested low on chromium so I started supplementing with that about 2 months ago .. There's a chance this will help my OI since our bodies need chromium to utilize glucose. I wanted to apologize too if I sounded short in some of my posts here ... I get into "research mode" and forget everything else ...
  8. I could've written this .. Narc episodes are very different from hypoglycemic. I used to try to sleep standing up. I think the only think keeping me awake was my nocturnal myoclonus (jerking when I'd go into REM). I'm working on my OI (orthostatic intolerance) now too. Sorry to get off topic, but have you tried salt loading ? It helps quite a few ... I don't pass out, I just get fuzzy headed and weak after 20 minutes of light activity like housework. Then I have to lay down or sit until the feeling is gone ...
  9. Sorry to hear you're having such a tough time. I was doing this for the first 2 - 3 years but now I'm recovering quicker now. I was told it's probably because my nutrient levels are have built back up .. which is true ... my labs show this. Have you had your nutrient levels tested ? And have you tried DPP-IV ? I've heard a lot of people say that it's helped them with CC. And there is research that states taking a digestive enzyme on an empty stomach can eliminate undigested proteins in our bodies. So, I usually take it for a day or so afterwards too ...
  10. That was the certified gluten free one too ... I woke up with myoclonus in my hand this morning and I know it's been at least 2 years since I've done that ... It could always be a problem with oats too. I love 'em and couldn't wait to try these. Maybe my body started creating antibodies to oats proir to going gluten free since I was eating so much of them ...
  11. So far I've only tried the name brand Natural Sunbutter by Sun Gold foods .. it says gluten-free on the label. I've been ok with it .. This is my 4th jar in the last 2 months ... I forgot .. here's the leaky gut article I've been looking at ... http://mdheal.org/leakygut.htm
  12. Here's another article on leaky gut that goes into great detail on what leaky gut is ... http://mdheal.org/leakygut.htm
  13. Have you tried Sunbutter ? It's made from sunflower seeds and it's better than peanut butter .. I'm a super sensitive celiac too. It really sucks ... I'm fairly certain I'm reacting to Bob's Red Mill oatmeal now. Of course I ate it for 4 days straight so that didn't help. I don't get "D" either. At least not anymore. I had it all the time before going gluten-free but not since. I mostly get rock hard "C". TMI ... lol ... I almost forgot ... Have you all looked at treating leaky gut ?
  14. I agree all this info can be overwhelming but getting your nutrient levels tested could save you some recovery time. I was tested after about a year on the diet and found to be B12 and iron deficient. I felt a whole lot better once I got those built back up. And .. I was just retested a few months ago, 3 years after starting the diet and found out I'm chromium deficient. Oh and if you're feeling weak or dizzy, a BG tolerance test would be a good idea too. These are things that are easily treated and can make a big difference in how you feel.
  15. Welcome. I had iron and B12 anemia when I was first diagnosed as a celiac too .. While I don't remember exactly how those iron pills affected me, I did have to stop them. I used a cast iron pan and ate rare beef and buffalo to get my iron back up. If it's too low a doctor can order iron IV's, but my doc thought the risk involved with these was too great overall. Edited to add ... I reacted to the prescription ones my doc ordered too ..
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