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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to DJBC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Multiple symptoms and mixed provider responses
Welcome to the forum, @DJBC! Which IGA test did you get done. From the magnitude of your score (336) that sounds like a total IGA score, not a tTG-IGA score. Total IGA is a test for IGA deficiency, not for celiac disease per se. The centerpiece test for celiac disease is the tTG-IGA. If there is IGA deficiency, it will result in an artificially low tTG... -
- knitty kitty replied to MagsM's topic in Related Issues & Disorders9
Inflammation and Menier’s disease link?
@MagsM and @leenora, Thiamine improves Alzheimer's. Thiamine has anticancer effects in high doses. Thiamine helps improve Hashimoto's. I'm linking information you may find helpful. Evaluation of neuroprotective role of benfotiamine in Alzheimer's disease model: A randomized control study https://pubmed.ncbi.nlm.nih.gov/40176579/ Supplemental... -
- Pamp8 replied to Pamp8's topic in Dermatitis Herpetiformis6
Dermatitis Herpetiformis
Thank you for all of these helpful answers! I really appreciate them. I typically eat 2 eggs every morning, so I'm going to stop those, in case the iodine is an issue. And, I'm checking all of my medications and supplements for gluten. I will try some of these other suggestions, too. Thank you all. I feel like I have a little bit of hope that this can get... -
- DJBC posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Multiple symptoms and mixed provider responses
So I’ve had horrible stomach problems for as long as I can remember. Diarrhea is usually every other day at least, sometimes worse, sometimes a little better. It can happen within 5 minutes of finishing eating most things. I’m also constantly tired, I haven’t gained a pound since I was 18 (I’m 26), my memory is trash, and the thing that really made me wond... -
- MagsM replied to MagsM's topic in Related Issues & Disorders9
Inflammation and Menier’s disease link?
Hi Leenora, thanks so much for sharing your journey. Yes, I am based in Ireland and I think the primary care docs should know better here. Like yourself my IGA was undetectable. I do not have any major GI symptoms as a result my doc would only order total IGA as the next step and not IGG - so frustrating. I am ready to start a gluten free diet which will...
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