-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Join Our eNewsletter:Support Our Content
Publications & Publicity
Share stories, news, and articles here.
16,609 topics in this forum
-
- 0 replies
- 612 views
-
- 0 replies
- 511 views
-
- 0 replies
- 504 views
-
- 0 replies
- 622 views
-
- 0 replies
- 768 views
-
- 0 replies
- 1k views
-
- 0 replies
- 617 views
-
- 0 replies
- 458 views
-
- 0 replies
- 776 views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 0 replies
- 561 views
-
- 0 replies
- 464 views
-
- 0 replies
- 376 views
-
- 0 replies
- 679 views
-
- 0 replies
- 654 views
-
- 0 replies
- 560 views
-
- 0 replies
- 555 views
-
- 0 replies
- 458 views
-
- 0 replies
- 619 views
-
- 0 replies
- 518 views
-
- 2 replies
- 1.5k views
-
- 0 replies
- 902 views
-
- 1 reply
- 1.1k views
-
- 0 replies
- 498 views
-
- 1 reply
- 1k views
-
- 0 replies
- 550 views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- knitty kitty replied to HectorConvector's topic in Related Issues & Disorders348Terrible Neurological Symptoms
I respectfully disagree, @Scott Adams. Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss. The body will use stored fat and muscle to provide energy in thiamine deficiency. This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass. Using stored fat and muscle for energy requires... -
- Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Digestive symptoms yet negative celiac screening
You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test... -
-
- Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease
That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce... -
- Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Digestive symptoms yet negative celiac screening
@Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.6k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
0May 06, 2026 11:00 PM
Until
May 07, 2026 12:00 AM
-
0May 07, 2026 11:00 PM
Until
May 08, 2026 12:00 AM
-
Posts
-
By knitty kitty · Posted
I respectfully disagree, @Scott Adams. Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss. The body will use stored fat and muscle to provide energy in thiamine deficiency. This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass. Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates. Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain. Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation. Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on. SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times. SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients. Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide). High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing. It improves "leaky gut". High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria. Thiamine TTFD is beneficial for neurological issues. Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog. Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together. Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well. Minerals like Magnesium, Calcium, Iron, Potassium, and others may need to be supplemented as well. Thiamine and Magnesium make life sustaining enzymes together. Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome! So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/ -
By Aretaeus Cappadocia · Posted
You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.) -
-
By Scott Adams · Posted
That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable. -
By Scott Adams · Posted
@Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
-
