Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Help!

gfreemom72

Recommended Posts

gfreemom72 Newbie
gfreemom72
Posted

So this confuses me.....take a Gluten-Free product like Chex cereal.....some celiacs say they can eat with no problem, while others are more sensitive and have a problem after eating it.  If you aren't ultra sensitive and don't react after eating it, does that mean it's not affecting you internally?? I ask because my son has NO symptoms....we found celiac by accident....and this actually makes it harder.....I let him eat things that are labeled Gluten-Free, but often wonder if some celiacs get symptoms from such foods, couldn't they be damaging his intestines as well...even though he feels ok??

I feel like I'm not explaining this well...I hope someone understands my blabber! thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I eat Chex.  If they don't bother him and his follow-up Celiac panels are fine, he is probably not having any damage.  My antibodies are at a normal level when re-checked every year.

mushroom Proficient
mushroom
Posted

There is also the possibility that when people say they "react" to something, that their reaction is to something else in the product and not to cross-contamination. 

GottaSki Mentor
GottaSki
Posted

I agree with Karen and Mushroom.

 

I can't eat chex because of other intolerances -- my celiac kids all eat rice, cinnamon and chocolate chex often.  We use half plain rice added to the other half flavored ones to decrease total sugar -- but all three are absolutely gluten-free.

gfreemom72 Newbie
gfreemom72
Posted
  • Author

thank u, everyone!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    2. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    3. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    4. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Skin issues

      @Jmartes71, Been here. It's okay. You're not imagining things, but there's no bugs or parasites in your skin. The cats are not infecting you with anything. That's a hyperkeratotic plug that builds up in a hair follicle which does go deep and is attached by the hair sheath that looks stringy. It's a type of thing seen commonly in Dermatitis...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,044
    • Most Online (within 30 mins)
      10,442
    Cayla
    Newest Member
    Cayla
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
    • knitty kitty
      Skin issues

      By knitty kitty · Posted

      @Jmartes71, Been here.  It's okay.  You're not imagining things, but there's no bugs or parasites in your skin.  The cats are not infecting you with anything.  That's a hyperkeratotic plug that builds up in a hair follicle which does go deep and is attached by the hair sheath that looks stringy.  It's a type of thing seen commonly in Dermatitis Herpetiformis.   Niacin B 3, in the form Nicotinic Acid (active form that causes flushing) or in the form Niacinamide will help immensely with clearing this up.  Take 100 mg three times a day, and Tryptophan (another form of Niacin) to help you sleep and heal your intestines at night.   Kidney stones can result when the body doesn't have sufficient Thiamine B 1.   Are you taking a B Complex supplement?  The eight B vitamins are water soluble.  Many people with Celiac Disease benefit by taking a B Complex to boost absorption.   The cloves are great because they can reduce inflammation, but your body needs the Bs and extra Niacinamide as well.  Benfotiamine, a form of Thiamine B 1, is also needed in higher doses to heal the intestines.  If you get your intestines calmed down, your skin will calm down, too.  Benfotiamine has anticancer potential in higher doses. Rapid resolution of delusional parasitosis in pellagra with niacin augmentation therapy https://pubmed.ncbi.nlm.nih.gov/19061687/ Tryptophan metabolism: From physiological functions to key roles and therapeutic targets in cancer (Review) https://pmc.ncbi.nlm.nih.gov/articles/PMC12139378/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
×
×
  • Create New...