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College/grad School And Celiacs


lbeehenderson

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lbeehenderson Newbie

I've been gluten free for almost 3 years and still have bouts of discomfort and pain.  I am a "borderline" Celiac, meaning my doctors wont classify me as "full blown" Celiac because of testing. Weird, since I have a dead spot in my stomach from gluten and am extremely sensitive... but, with that said, no tests (not even an colonoscopy/endoscopy) come back positive.  

 

How do other people handle their symptoms when they occur at school?  

 

I have a hard time managing my discomfort, lack of appetite, anxiety, foggy brain and depression once I have been exposed to gluten but, it's exhausting.  

 

How do you eat on campus?  Most days I am at school 12-13hrs and even if I pack food, it isn't always enough. I'm scared to eat food that is prepackaged, even if it is labeled "Gluten-Free"; as I just recently found out that Amy's organic "gluten-free" burritos are still main on equipment that processes wheat! WTF? How is that even allowed?     

 

I'm frustrated and very tired of not feeling like I am able to concentrate on my research, when I am constantly fighting my symptoms.  Even after all these years of being gluten free....  

 

 


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shadowicewolf Proficient

I would just take it with me in any case. You can get those bigger lunchboxes that hold the cold really well and take your food along with you.

 

If you are still fighting symptoms, have you considered there may be something else in your diet that makes you feel bad? Some people cannot handle dairy, corn or soy.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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