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Numbness On Head And Face (Dizziness)


English Chris

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English Chris Newbie

I was diagnosed with Coeliac three months ago, as well as having the usual symptoms the most alarming is face numbing, a feeling of pressure in my head, dizziness and jelly legs, I wonder if anyone else has experienced this ?– I think this must be when Gluten gets into my system by accident. Over this bank holiday weekend my girlfriend and I ate out quite alot. All my meals were gluten free, but perhaps the chips were cooked in oil that had also cooked battered fish – the McDonalds was scrambled eggs, bacon and hash browns, then to top this off I had the ‘gluten free pizza’ at Pizza Hut. On Tuesday I woke with my head all over the place, I misjudged putting the kettle back on the holder, then driving to work my condition worsened to the point I diverted to hospital and went to A&E, I honestly felt I was having a stroke, perhaps some of it was an anxiety attack? After examination the doctor released me but suggested I should get tested for MS. Yesterday I saw my GP and he has referred me for a scan. Today I was with my girlfriend and my symptoms returned again I was so concerned I went back to A&E – again I was released but told not to drive until the scan had been completed. I’m just wondering if I am on my own with this, or has anyone else experienced this and how did they get over it? Many thanks in advance.. 


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shadowicewolf Proficient

Sounds like you got cc'd pretty bad. I wouldn't eat at fast food places even though they have 'gluten free' items. Too much risk...

Some experience nerological symptoms when cc'd by gluten.

ravenwoodglass Mentor

I agree with the previous poster. Sounds like you may have gluten ataxia which can cause symptoms much like MS. Gluten ataxia can cause brain lesions similiar to the lesions you would see with MS. So if you do have a scan make sure they also do a spinal tap if they think you do have MS. The lesions are similiar but you won't find the debris in the spinal fluid that you would with MS.

 

I know it is hard to not eat at restaurants but for some of us the risk is just too much in most places. I have had fairly good luck with PF Changs and Outback Steakhouse off their gluten free menus but wouldn't eat anything at Mcdonalds or Pizza Hut.

Deaminated Marcus Apprentice

I always had dizzy spells as a kid.

My urologist said to drink more water for kidney stones and coincidentally that helped with my dizzy spells.

I read dehydration is part of Celiac and that is a piece of my Celiac puzzle.

 

It could have been the eggs. 

Keep a food diary.

 

Good luck with the tests.

English Chris Newbie

Thank you all very much for your comments. I have a feeling it was the 'Gluten Free' Pizza that was contaminated. This morning I woke up feeling panicked again, this time I went for a run to burn off the adrenalin - it helped enormously. Still feeling dizzy and unsettled, but not panicked. 

Deaminated Marcus Apprentice

Sometimes dizzyness can be caused by a problem in your ears.

Then when you get dizzy, it can make the person feel panicky.

Maybe see an ear specialist?

 

Another cause is the blood pressure takes time to adjust when you get up suddenly.

 

Or a heart problem.

You could ask to wear a portable ECG heart monitor where you press a record button when it happens.

 

Then the other cause is dehydration.

 

 

(I've had dizzy spells all my life especially if I stand too long immobile)

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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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