Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Long For Results?


mshanson3121

Recommended Posts

mshanson3121 Rookie

Once you went gluten-free, I'm wondering how long it was until you saw consistent improvements in the areas of:

 

sleep?

bowel habits (specifically chronic constipation, floating stool and mucusy stool)

behaviors

sensory issues

gassiness


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

Everyone is different for us my DD was 7 at the time with completely atrophied Villi .

Sleep -1-2 weeks

Bowels - mildly better in 2 weeks but she had underlying issue's with Lactose( we didn't realize for 2 yrs)  and a undiagnosed  Thyroid problem 

Behaviors - they got worse before better , almost 2 months

sensory issue's - about a year

Gassiness -  years due to lactose intolerance and Thyroid problems

 

If I could go back I would immediately cut out as much lactose as possible to get a better picture in the beginning. We switched to Lactaid and hard cheese or lactose free cheese and eating yogurt at near room temperature and it's made a huge difference almost immediately. 

emsimms Apprentice

Everyone is different for us my DD was 7 at the time with completely atrophied Villi .

Sleep -1-2 weeks

Bowels - mildly better in 2 weeks but she had underlying issue's with Lactose( we didn't realize for 2 yrs)  and a undiagnosed  Thyroid problem 

Behaviors - they got worse before better , almost 2 months

sensory issue's - about a year

Gassiness -  years due to lactose intolerance and Thyroid problems

 

If I could go back I would immediately cut out as much lactose as possible to get a better picture in the beginning. We switched to Lactaid and hard cheese or lactose free cheese and eating yogurt at near room temperature and it's made a huge difference almost immediately. 

What does the yogurt at room temperature accomplish? Is it just easier on the system than cold yogurt?

mshanson3121 Rookie

Is it common for behavior to get worse initially when you switch to gluten-free?

greenbeanie Enthusiast

Once you went gluten-free, I'm wondering how long it was until you saw consistent improvements in the areas of:

 

sleep?

bowel habits (specifically chronic constipation, floating stool and mucusy stool)

behaviors

sensory issues

gassiness

My daughter's sleep improved within days (fell asleep easier, and less twitching and thrashing around in her sleep). She'd had huge, loose stools rather than constipation, but that started to improve within days. I think it was about 3-4 weeks before they stopped floating. Her sensory issues, which had been pretty acute, also improved steadily starting in the first week, but it was a few months before people who didn't live with her noticed a big difference. She's now been gluten free for six months and is still somewhat sensitive to sound and scratchy fabrics, but it's much better and still improving. I have to say, the gassiness hasn't changed much...but it doesn't seem painful or uncomfortable for her.

 

As for behavior, we did have a roller coaster with that. The first few days were great, but then things went downhill for a week or two. I assumed it was gluten withdrawal, and we just rode it out. There was steady improvement after that. Right before diagnosis, she had 5-10 tantrums almost every day. Within a month, she had two tantrums a day at most, and often none.

 

Overall, it pretty much felt like she had colic for the first four years of her life, but within two months she seemed well within the normal range of behaviors and temperament for a child her age.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...