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Claire

Ironic

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Osteoporosis is complex to say the least, and best attacked on several fronts.  Think of it as a four legged stool.  One leg is Calcium Balance, another is hormone platform, a third is weight bearing exercise, and the last is stress management.

A gluten-free diet that is truly nutrient dense and not j

Hope this helps...

<{POST_SNAPBACK}>

Thoughtful, useful post - thank you.

I am still losing bone in spite of addressing all the legs on your stool. Malabsorption is not an issue. The exact cause of the loss cannot at the moment be found. My doctor of course wants me to take any one of the wonder drugs (that take years to work - if they work). I tried one and gave up because of the physical distress it caused. I was holding my own but am now once again going negative. Not a happy picture. Claire

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Hi Claire -

Good to see more info for you...and for others, too. I also found out, 4 years or so ago, that I have osteopenia, so I also need to get more serious about how to help my gut absorb more calcium...

Anway, I am hoping you are going to do the Enterolab gene test - I'll be checking in occassionally on you... and George... and the other members I have come to 'feel' for - hoping that we all make progess together.

Oh, about this type of medium making it easier to share our stuff than in-person contact - I agree - it is good to be able to focus on our issues, without the 'noise' of in-person social interactions...and to also be able to do so when we feel up to it.

Fondly,

Gina


"Get busy living

or get busy dying."

From: The Shawshank Redemption

--------------------------------------------------------------

gluten-free since Jan 1 '05

Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:

Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA

via blood testing 53 days after I began the gluten-free diet on my own:

Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9

Since 30+ = positive for Celiac Disease when ingesting gluten, my doc

diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point

-------------------------------------------

Endoscopy with biopsies, AND colonoscopy with biopsies were done,

only to rule out other possible GI problems (especially intestinal

lymphoma) - My doctor told me the results indicated "no current damage

found" - and that as long as I stay gluten-free, I don't need another

biopsy for ten years.

Follow-up blood testing was done about one year later, by the same

Gastro doc, in Nov '05:

Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)

He then told me my tests results were back to normal, and "Keep up the

good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am

staying gluten-free.

------------------------------------------------------------------------------------------

ADDTIONALLY:

I was also diagnosed as positive for antibodies and autoimmune

response to gliadin by Enterolab, via stool specimen taken 56 days

gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit

---------------------------------------------------------------------

I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:

"positive" for casein antibodies from Enterolab (in Feb '05)

and

"positive" for casein IgG (Elisa) via York Labs' finger-prick blood

test, Sept '05

and continued 'stomach pains,' although nothing compared to before

going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!

**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood

Frequent childhood stomach aches, underweight, picky eater

Tooth enamel problems/excessive cavities in childhood

Diagnosed in 20's with non-allergic rhinitis

Two spontaneous abortions (childless)

IBS diagnosis at age 28 (all better post going gluten-free and casein-free)

["Horrible" digestive problems from ages 32-47 - excess gas,

diarrhea gone post gluten-free!]

Reflux diagnosis at age 35 ('reflux' gone post gluten-free)

ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)

Broke elbow in 2 places, age 39

Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -

taking Calcium and Vit D now)

Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)

Minor depression with anxiety diagnosed at age 42 (taking Paxil)

Skin cancer - squamous at age 43 and pre-melanoma at age 45

Adult acne (this, too, went away, but only after going dairy-free)

Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46

(That's gone now, too!)

Excessive bruising of skin began at age 45:

I was told by derm doc AND family physician "That's just thin, aging

skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual

bruising POST going gluten-free! I can now wear skirts and shorts

again!)

SO many years of being sick...

Hopefully, others will benefit from Science, and the increasing media

attention being given to Celiac Disease and gluten-based illnesses,

and will not have to go through what I, and others on here, have had

to go through.

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Hi Claire -

Oh, about this type of medium making it easier to share our stuff than in-person contact - I agree - it is good to be able to focus on our issues, without the 'noise' of in-person social interactions...and to also be able to do so when we feel up to it.

Fondly,

Gina

<{POST_SNAPBACK}>

Good to 'see your face' again. I am sure everyone misses hearing from you. I will send you some osteo tips 'off forum' as it does tend to take others off topic. Claire

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