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Anyone With Iga Nephropathy?

mojo124

By mojo124
in Related Issues & Disorders

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mojo124 Newbie
mojo124
Posted

Hi all,

I was diagnosed with IgA Nephropathy last year. So far, I haven't responded to treatments and have read that there can be a link between this form of kidney disease and Celiac disease. I haven't been tested and, truthfully, the idea of an endoscope scares me. I've always had what I thought was IBS-like symptoms, but never noticed a link between my stomach problems after eating a meal that was high in gluten. I am overweight, and *do* carry most of my weight in the stomach area, which makes me wonder if I could possibly react badly to gluten. Any easy ways to tell if I am gluten allergic/sensitive/intolerant, etc. without doing an endoscope? (I am a surgery phobe; I get very sick even with twilight sedatives and hate the idea of having a tube shoved down my throat).

Is there anyone in this group who has IgA Nephropathy? Have you found that your kidney function improved by removing gluten from your diet? I would love to hear any personal success stories, mostly to give me the motivation to try a gluten-free diet. The idea just sounds so hard as of right now. I love wheat!

Thanks in advance.
 

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kareng Grand Master
kareng
Posted

Hi all,

I was diagnosed with IgA Nephropathy last year. So far, I haven't responded to treatments and have read that there can be a link between this form of kidney disease and Celiac disease. I haven't been tested and, truthfully, the idea of an endoscope scares me. I've always had what I thought was IBS-like symptoms, but never noticed a link between my stomach problems after eating a meal that was high in gluten. I am overweight, and *do* carry most of my weight in the stomach area, which makes me wonder if I could possibly react badly to gluten. Any easy ways to tell if I am gluten allergic/sensitive/intolerant, etc. without doing an endoscope? (I am a surgery phobe; I get very sick even with twilight sedatives and hate the idea of having a tube shoved down my throat).

Is there anyone in this group who has IgA Nephropathy? Have you found that your kidney function improved by removing gluten from your diet? I would love to hear any personal success stories, mostly to give me the motivation to try a gluten-free diet. The idea just sounds so hard as of right now. I love wheat!

Thanks in advance.

celiac blood panel?

mojo124 Newbie
mojo124
Posted
  • Author

celiac blood panel?

I've been told that's not an accurate means of which to diagnose celiac. Is it considered valuable by most doctors?

kareng Grand Master
kareng
Posted

I've been told that's not an accurate means of which to diagnose celiac. Is it considered valuable by most doctors?

 

It is used by The Celiac experts/researchers.

 

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