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Cholesterol And Vitamin Issues


Pollymo

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Pollymo Newbie

I am 8 months into my new life ( positive for celiac thru blood tests.) I had a panel of tests run yesterday to see how my numbers are looking. Celiac panel isn't back yet but my cholesterol came back. Both good and bad were high. Plus, vitamin d and b12 were still really low. Is there a correlation to this? I was told to start taking supplements. What is a recommended brand of gluten-free vitamins? Thanks!


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psawyer Proficient

Welcome to our community.

B12 deficiency is very common in folks with celiac disease, both before and after diagnosis. Any vitamin deficiency may be related to damage to the villi, which can take a long time to recover after going gluten-free.

nvsmom Community Regular

Cholesterol highes and lows seem common in celiacs. The system wide inflammation can help raise cholesterol, and then some of us have too low cholesterol (I'm guessing from issues with absorbing fats). I'm glad your HDL is looking good. Many celiacs find the LDL comes down as they cut many grains (and the sugar it creates) from their diet.

 

Sublingual (dissolves in mouth) B12 and D are a great place to start. Vitamins absorbed into the mouth are thought to work better for celiacs. Most drugstores will carry those.

 

Best wishes

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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