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nvsmom last won the day on May 5 2019

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About nvsmom

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About Me

ITP 1992

Celiac 2012

Hashimoto's 2012

Prediabetic 2014

"Acceptance is the Key to Happiness." Best fortune cookie ever!

  1. Unfortunately, your story is pretty common. I think being told "it's all in your head" should be a symptom of celiac disease - it would be a popular one. I first saw the doctor about my "tummy aches" when I was 8 or so. I remember being told that I was just one of those people who gets a stomacah...
  2. My appetite became pretty big after a couple of months too. I'm afraid I'm not sure why. I enjoyed it as much as I could though.
  3. I would GUESS a couple of weeks will see you healed up. A gluten challenge for a biopsy is 2-4 weeks, so you should be okay in 6 weeks... I'm guessing though. I hope you don't have to reschedule. Feel better. Oh! L-glutamine is supposed to help with healing of the intestines (and muscle recovery...
  4. Listen to Squirmingitch - she is our resident expert. She really knows her dh stuff! I don't know as much so I'll just wish you luck on finding answers fast.... and welcome to the board.
  5. When I first went gluten-free I lost about 10 lbs without doing a thing because of the inflammation departing. I got down to about 150lbs, which for a large framed 5'8" woman, isn't bad. Then about a year and a half ago I started gaining weight. I blamed it on the corticosteroids I had started...
  6. I'm sorry you are going through this. It sounds as though he isn't being too willing to put himself in your shoes. Would he consider trying more things rather than just going out to eat for dates? Go play a sport, go for a walk, a movie, or just go for coffee? That's a good compromise. If...
  7. LOL Good update. I'm glad it was nothing! Annoying that he caused you so much stress... Dud is right! LOL
  8. I don't know if that is entirely true. Some celiacs do not become super sick (bad symptoms) from celiac disease, yet some with NCGS may get life altering symptoms (like ataxia, neuropathies, arthritis). As far as I can tell, the main difference between those with NCGS and celiac disease is the...
  9. I'm okay. Having some issues with arthritis, not my old celiac-caused type of arthritis, which is slowing me down, but overall I'm fine. Dr google is a good friend to people like you who have had doctors fail us so badly. At least you are going into this appointment well prepared and know what...
  10. ((hugs)) It's true, we often misdiagnose ourselves when we take responsibility for our own health. In the past 3 years, I thought I had lupus and acromegaly with a small brain tumor. Thankfully I was wrong, so I sort of understand your stress, to a lesser degree.... It's hard to wait. Not knowing...
  11. She only had one celiac disease test done, and that test, the tTG IgA, can miss up to 75% of celiacs. Plus she did not have the total serum IgA done, which is a must for determining if the IgA based celiacs tests (tTG IgA, DGP IgA, etc.) are accurate. Approximately 1 in 20 celiacs is deficient...
  12. If she is not eating anything while there, or walking through a flour dust cloud, then it is most likely not celiac disease or non-celiac gluten sensitivity (NCGS. for which there is no test. That disease and sensitivity are triggered by consuming gluten, meaning it has to get inside and onto your...
  13. I tend to like bacon and eggs, or coconut flour pancakes for breakfast, but I eat a lot of other foods too: trailmix (nuts, raisins, seeds, coconut, cacao), coconut yogurt, raw veggies with tzaziki of hunnus dip, pepperoni sticks, cheese, coconut cream in my coffee, smoothies and leftovers. I rarely...
  14. Yep! A trauma to the body can trigger celiac disease, and we all know pg is a bit of a trauma! LOL
  15. I get frustrated by those who are supposedly gluten-free but don't worry about the crumbs, or soy sauce, or eat the turkey stuffing because it looks so good. Those are the ones who get to me because they make it harder for people to take my needs seriously, since they don't take it seriously themselves...