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Sharing Toothpaste Tube?

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Is it necessary to avoid sharing a toothpaste tube with a gluten-eater? My daughter and I have kept a separate toothpaste tube since her diagnosis. My partner eats gluten outside of the house and uses a different tube. This is easy enough to do, but sometimes if we run out or go on vacation or something, it would be easier for us all to share one tube.

Obviously I won't do this if there's a real risk of cc - we've been very careful never to share toothpaste so far. But I'm wondering if I'm being too paranoid in worrying about this, or if it really is a necessary precaution.


Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosed by GI with "presumed celiac" based on health history, celiac in family, and resolution of fat malabsorption and many other symptoms on gluten-free diet. Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Negative celiac tests after 15 years gluten-light and then a brief but awful gluten challenge. 

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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosed by GI with "presumed celiac" based on health history, celiac in family, and resolution of fat malabsorption and many other symptoms on gluten-free diet. Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Negative celiac tests after 15 years gluten-light and then a brief but awful gluten challenge. 

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Do you use a particular brand of toothpaste? I have never purchased a brand looking for gluten-free.

Late response, but all variations of Crest and Colgate are gluten-free, and available everywhere. 


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Thank you!  Lightbulb moment!  I share the toothpaste with my family but the other day, by mistake, I used one of my gluten eating children's toothbrushes.   Now it may or may not be related but these last two day I have had some awful canker sores develop in my mouth -  I had two bad bouts before DX but no recurrences since being gluten-free.  Could this be why?  Not sure - but thanks for starting the post as it might have helped to explain my problem!


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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Thank you!  Lightbulb moment!  I share the toothpaste with my family but the other day, by mistake, I used one of my gluten eating children's toothbrushes.   Now it may or may not be related but these last two day I have had some awful canker sores develop in my mouth -  I had two bad bouts before DX but no recurrences since being gluten-free.  Could this be why?  Not sure - but thanks for starting the post as it might have helped to explain my problem!

A gluten eating kid's toothbrush could possibly have done it, especially since kids may not be diligently flossing the bread chunks out of their teeth before brushing... lol.  Would definitely be only a small amount of contamination if it were there.  Maybe get one of those travel toothbrush holders and keep yours in there, to prevent you using theirs and vice versa.


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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A toothbrush glutening makes sense since various medical type articles I have read recommend that you switch to a new brush if you have been sick. 

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Hey everyone!

Old topic, but I am wondering if anyone else has any new feedback since 2015 about sharing a tube of toothpaste with a gluten eater. I am so insanely safe, but feel that I am somehow always in the inflammation stage, I know it can take time to heal after having been undiagnosed for decades, but I am still wondering about this. In the meantime of course, I am careful and use my own BUT after more than half a year, I still have a hard time differentiating between being extremely cautious and being paranoid ? 

thanks in advance and hope everyone is feeling well today!


2.5 pounds at birth, anemic and now iron deficient and hope for normal levels once villi return.

Diagnosed Celiac myself then confirmed by blood test and endoscopy July 2018. Colonoscopy=normal! 
Seizures from 8yrs old to 32, then nothing until 45 yrs old, seizure on dec 1st 2018. No brain damage on MRI.

DDD in several discs, and 2 herniated cervical discs, 20 years of BODY pain, but MUCH better since gluten-free & yoga.

Plantar Fasciitis and neuromas in feet, arthritis in big toes. Tendonitis in lower leg, tennis elbow. Pain while walking since mid 2016 with all these issues, but better with physio/ schockwave therapy.

ON a gluten-free, vegetarian, low fodmap, no more than 2 ingredients in processed food diet. Blepharitis since mid 2016, but getting better recently after allergy discoveries: Soy, Lactose, Apples, Celery, Hazlenuts, Almonds.

Mononucleosis at 15yrs old for 6 months

Dedicated to doing better, living an easier life full of fun, getting rid of intolerances, pain and doing research to help myself and to help others.

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We never share toothpaste.  We each have our own.  We keep all our toiletries in bins in a cupboard.  Pull our your personal  bin and you have everything you should need to get you ready.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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19 minutes ago, cyclinglady said:

We never share toothpaste.  We each have our own.  We keep all our toiletries in bins in a cupboard.  Pull our your personal  bin and you have everything you should need to get you ready.  

Thanks Cyclinglady! BTW our home has gone completely gluten-free and we use gluten-free toothpaste, I guess I need to stick to using my own forever since my husband eats gluten outside the home eh? oh well! Good idea about the bins, it will make our bathroom more functional and organised and will leave no room for error. (desperately looking for silver linings ?). OH my dear, do I also need to not share towels, soap? I guess not. ayyyyy I thought I took care of every last detail. Is there are clear list of things somewhere online? thanks


2.5 pounds at birth, anemic and now iron deficient and hope for normal levels once villi return.

Diagnosed Celiac myself then confirmed by blood test and endoscopy July 2018. Colonoscopy=normal! 
Seizures from 8yrs old to 32, then nothing until 45 yrs old, seizure on dec 1st 2018. No brain damage on MRI.

DDD in several discs, and 2 herniated cervical discs, 20 years of BODY pain, but MUCH better since gluten-free & yoga.

Plantar Fasciitis and neuromas in feet, arthritis in big toes. Tendonitis in lower leg, tennis elbow. Pain while walking since mid 2016 with all these issues, but better with physio/ schockwave therapy.

ON a gluten-free, vegetarian, low fodmap, no more than 2 ingredients in processed food diet. Blepharitis since mid 2016, but getting better recently after allergy discoveries: Soy, Lactose, Apples, Celery, Hazlenuts, Almonds.

Mononucleosis at 15yrs old for 6 months

Dedicated to doing better, living an easier life full of fun, getting rid of intolerances, pain and doing research to help myself and to help others.

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We share hand towels and soap, but our gluten eating teen makes it a habit to wash her hands when she gets home.  We all do.  I used to change my hand towels more frequently when she was little.  Kids tend to be sloppy about cleaning.  It is one reason why we made the house gluten free when she started to want to help me in the kitchen.  Where did my helper go?  Oh yeah, she has her own busy life!  

Not sure there is a clear list online.  But remember, you have to ingest enough gluten to set off an autoimmune response.  Every time I have been glutened, it has occurred when someone else (aka restaurant) prepared my food (suspect one drug...too) and not from grocery store food I purchased or prepared.  Keep in mind that my hubby had been gluten free for 12 years before me.  I got to be good at recognizing gluten on labels!  

Shared homes are fine with the right procedures in place.  I just like being in one place where I can let my guard down.  Piece of mind is priceless.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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YES Cyclinglady peace of mind is priceless. I love having a place where I don't need to worry. Our kitchen is all gluten free. I am getting into organising our apartment more, all my gluten free medications are clearly marked. I only have a few in case of emergency (allergy meds, anti inflammatories) Are all your toiletries gluten free for your whole household as well? I can't really afford to buy my husband gluten free shampoo and soaps. he's got thick long hair, for now i haven't even looked at his shampoo. we don't share shower towels. Ha! there are so many things to think about, but like you say, it does take a certain amount to do damage and i am not ingesting his towel anyway :)


2.5 pounds at birth, anemic and now iron deficient and hope for normal levels once villi return.

Diagnosed Celiac myself then confirmed by blood test and endoscopy July 2018. Colonoscopy=normal! 
Seizures from 8yrs old to 32, then nothing until 45 yrs old, seizure on dec 1st 2018. No brain damage on MRI.

DDD in several discs, and 2 herniated cervical discs, 20 years of BODY pain, but MUCH better since gluten-free & yoga.

Plantar Fasciitis and neuromas in feet, arthritis in big toes. Tendonitis in lower leg, tennis elbow. Pain while walking since mid 2016 with all these issues, but better with physio/ schockwave therapy.

ON a gluten-free, vegetarian, low fodmap, no more than 2 ingredients in processed food diet. Blepharitis since mid 2016, but getting better recently after allergy discoveries: Soy, Lactose, Apples, Celery, Hazlenuts, Almonds.

Mononucleosis at 15yrs old for 6 months

Dedicated to doing better, living an easier life full of fun, getting rid of intolerances, pain and doing research to help myself and to help others.

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