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Waitingindreams last won the day on January 17 2015

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About Waitingindreams

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About Me

Celiac Disease/IBS. Diagnosed July 5, 2013. 




  1. Thank you so much for your reply! I was just beginning to doubt myself...if I made a mistake by just accepting their decision (after my first appeal) or if i should have really tried to fight back on it. I felt like such an idiot...I thought it would be a sure thing that I'd get approved, I felt...
  2. Hi cyclinglady! It has been a long time. I had myself convinced I was managing my celiac disease with the SCD. It - did help in certain ways, but I still had skin issues, chronic fatigue, etc. Trying to find a way to get my histamine issues OFFICIALLY diagnosed. It seems that if I can stay away from...
  3. (I wasn't sure what category was appropriate here) I am trying to keep this brief. Back last year, I was feeling really sick, despite sticking to the gluten free diet and never cheating. In fact, I was even doing the SCD diet and STILL I had plenty of health problems. I also was under a...
  4. I've experienced this more times than I can count. It's always really scary! The worst part is that sometimes I will have dreams that I'm in water and I'll actually hold my breath in my sleep, and wake up gasping for air. That seems to happen a lot less often since I switched to a much healthier...
  5. I saw someone else already mentioned this - but I agree that the "halitosis" is most likely due to your hiatal hernia. I was in the same boat as you - my boyfriend of a couple months started telling me that I had bad breath. At first, I shrugged it off and blamed it on the white garlic pizza...
  6. Ooh boy! I am excited for this. Gotta prepare. -runs in place, shakes out hands- OKAY! Here are my ideal situations: - More SOY free gluten free meals available...both in restaurants and stores. A lot of people with celiac disease can't have soy either, and we are already limited by gluten...
  7. Oh! Thanks Karen, I didn't even notice that! I'll definitely check the ingredients if I see the brand in the store.
  8. Thanks for the tips! I will definitely be looking for those in the store. I might even be able to have them on my strict diet! Maybe the BF will like them too, hmm.
  9. http://blog.scdrecipe.com/blog/2012/12/07/gluten-free-not-working-for-celiac-disease-youre-not-alone
  10. I think anyone dealing with refractory celiac disease should definitely look into the Specific Carbohydrate Diet. I suppose by the guidelines, I myself would be considered refractory. The gluten free diet was helping, but it wasn't enough. I still wasn't losing the weight I gained. The bloating was...
  11. I just wanted to throw my 2 cents in to this topic... I went to the doctor last summer (July 2013) because I just didn't feel good at all. EVERYTHING I ate seemed to go right through me, or give me sharp stomach pains. Sandwiches, minestrone soup, my mom's fried dough, salad, etc. Except for...
  12. Oh wow, thank you everyone for your answers! Using olive oil sounds a lot easier, but I will definitely look into the cooking spray for other uses. It could come in handy. I hadn't heard of the sprayers either. I haven't used the waffle iron yet...my diet is so strict (grain free, etc) and I haven...
  13. Oh wow! I'll have to look into it. I viewed the website and for some reason it doesn't list the ingredients. Grr! But hopefully it will be easy to find in a store. Thank you!
  14. Does this even exist? My boyfriend's mother just gave us a brand new waffle iron, and I want to try a recipe for SCD approved waffles. You need to spray the waffle iron, but every cooking spray I've seen has soy in it. Has anyone seen anything different? Could I just brush the waffle iron with olive...
  15. I happened to get pretty lucky in that area. I was diagnosed just over 2 weeks after I started dating my boyfriend. He didn't really know much about it at all, but he was very supportive. He found apps to download on his phone, and he started looking into gluten free restaurants for us to go to....