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About WinterSong

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    Theatre, cooking, singing, dance, yoga, fitness, gluten free baking, eating chocolate

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About Me

My recipe blog "Tasty Meditation: Tales from a Gluten Free Kitchen" can be found at www.TastyMeditation.blogspot.com



Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test - March 18th, 2011
tTG-IgA >300 Positive
EMA-IgA >1:320 Positive
Gliadin >400 (high)

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

  1. Because I think the moral thing to do is inform the parents that quotes from their kids will be posted online. I include the option to message me because some parents prefer to not post about their children publicly. I’m pretty sure it doesn’t violate any self promotion since my blo...
  2. I'm not religious at all, but I was really upset when the pope totally rejected gluten free wafers. I love what is written above - God/Jesus would not want anyone to get sick. I hope more churches offer totally gluten free options for those who need it.
  3. Hi! I want to make sure I don't break any self promotion rules. Is this an acceptable post since I do not mention my blog's name and do not include any links? I've been a member of this forum for years. "Hey parents - I'd like to put together a list of positive quotes from kids with Celiac....
  4. I don't think there is anything to stop an autoimmune reaction. However, I would try meditating. The stress of knowing when we are going to get sick does not help us.
  5. What are your symptoms? Do you know your reaction time? Unfortunately, I don't think there is a way to immediately stop a gluten reaction. Drink lots of water, rest, and be kind to yourself. Sorry to hear that you got glutened!
  6. Thank you so much for your advice! I'll try some of your suggestions. Unfortunately, I think I'll be skipping the dermatologist if I can manage. Super high deducible means i'd be paying out of pocket
  7. This is the second time this has happened over the past 2 months. I've developed some very dry skin that starts at the base of one ear and wraps down/under/around my entire jawline. It's not my entire neck - it mostly wraps in a line around my face. My makeup/brushes never touch that area and I haven...
  8. I made an informative video for Celiac Awareness Month that demonstrates how small 20ppm is. Am I allowed to post a vimeo link? Thanks!
  9. http://www.nbcnews.com/nightly-news/video/celiac-disease-affecting-millions-of-americans-often-goes-undiagnosed-692131907739 This was on last Tuesday. So happy that a popular national news program is spreading good information!
  10. I am so angry. I am all about universal screening for Celiac Disease. It is a tricky disease to diagnose. Your only symptoms may be joint pain, depression, or weak nails, which people will try to cure with medication or a good manicure. With roughly 80% of the Celiac population remaining undiagnosed...
  11. Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley. Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with. To reiterate, our...
  12. Hey guys, I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same...
  13. My apartment is Christmas cookie central!

  14. I've talked about my experience on this board before. My boyfriend at the time of my diagnosis was terrible. He refused to believe that I was sick, didn't want Celiac Disease to exist, didn't care if I got glutened because of his behavior, and threw a fit if I ever tried to have a discussion...
  15. No, Celiacs can never tolerate gluten. I've heard of people saying that they have "Light Celiac" or "Mild Celiac". There is no such thing. Celiac is Celiac. Even the smallest amount of gluten will affect you. What does vary is the type of reaction in terms of symptoms. Some people will have a...