Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Anxiety, ocd since gluten free / medicine absorption / slippery elm


Dsa

Recommended Posts

Dsa Newbie
Hi all,

I posted a similar posting over in the research forum but thought it may be more fitting here:

I was diagnosed with celiac disease last year June and have been on a strict diet ever since. However since about a month after my diagnosis and diet change I have experienced am onset of ocd and anxiety. I am on topamax and lamictal for unclarified migraine / epileptic type symptoms (not seizures) and have been for a few years :

Is it possible that since going gluten free the medicine is absorbed differently (I.e more purely?)

I have long suspected that I may be suffering from some form of hypothyroidism, but I have had repeated tests and now just had a full panel - which returned normal.

I've been thinking about trying slippery elm to try repair stomach lining / villi, because I believe my medicine dosage may be too high now, and slippery elm may put the absorption back in line to before I went gluten free (I.e when not much was being absorbed) is this a possibility? 



Has anyone else experienced this ? I find doctors don't know much about this stuff.

Thanks all,


 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Did you get your thyroid tested for Hashimoto's thyroiditis?  It is harder to get diagnosed as some of the test results come back in "normal" ranges, if the doctor did not order the tests for the auto immune disease.

I was diagnosed with Hashimoto's before going gluten free.  I did have to adjust the medication level to a lower dose, as my get was absorbing better.

None of us are real doctors so please get your medication levels evaluated by your doctor and do not start any supplements without medical guidance.

I also suggest you get you vitamin and mineral levels tested.  Celiacs can be deficient in so many nutrients.  i.e. Vitamin B 12 deficiency can have anxiety as a symptom.  Most "silent" Celiacs get diagnosed from severe anemia.

Most of the gluten free food substitutions are not vitamin and nutrient fortified like the gluten counterparts you were eating.  Discuss with your doctor about a gluten free vitamin supplement.

The bold type is part of the new system bugs.  I couldn't get it to turn off after an accidental bump.

knitty kitty Grand Master

This might be interesting to you

Open Original Shared Link

Open Original Shared Link

Do get your vitamin levels tested.

I would not recommend slippery elm because it produces a slime that is difficult to break down.

 

Dsa Newbie

Hi and thank you for your responses, it is much appreciated.

I went for a few blood tests last week - my S-TSH, S-FT4, and S-FT3 are all within normal range as well as TG and TPO anti bodies (also well within normal) So I suppose I have covered that?

As far as vitamins are concerned, I have been taking slow mag magnesium and B12 with folic acid for a while in the mornings - I have recently added Metagenics Cortico B5 B6 to assist with adrenal function.

 

I hope the Cortico will help perhaps.

 

Thanks again,

 

D

 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    5. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • akebog
      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
×
×
  • Create New...