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News: Celiac.com: Why Following a Gluten-Free Diet Is Difficult Long-Term


Scott Adams

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Scott Adams Grand Master

Turns out, going gluten-free is the hardest diet to stick with; only 12 percent of ... Bottom line: With the exception of those who have celiac disease, ...

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There is just so much wrong with this article, it's ANNOYING.  ;)  I think if you have Celiac Disease and are symptomatic, then it is not hard to stick to the diet long term. I don't know about you but having diarrhea and vomiting just isn't on my list of fun things to do, not to mention the severe anxiety and myriad of other symptoms that rear their ugly heads when I am even cc'd. I have been gluten-free for 11 1/2 years and, while it is not convenient at times, hard it is not. I realize if you are a person that likes to eat out often, that is going to have to change. You can still eat out safely but not every week or even every month.

The biggest hurdle I have seen from reading posts on this forum is that many people do not take the time to read the correct books and take the time to LEARN the diet correctly.  I see this in the other Celiac's in my family.  It's like Type 1 diabetes....they have classes when you are diagnosed that you have to go to and I really think that needs to happen when people are diagnosed with Celiac. It is as serious of a disease as diabetes is so the medical profession and insurance people need to get a clue.

As for weight loss, anyone can do it.  I know that is going to piss some people off but weight loss is hard and you have to stick to a plan and that is what makes people lose their mojo and quit.  With a good food plan and exercise, I have seen people lose more weight than I weigh myself so I know it can be done. You have to find the motivation to keep you on track, and that part might be harder than the actual diet and exercise.  There is no miracle diet out there and it is work but most things of value take hard work to get there.

The last crank from me..........why is it that if you don't eat a lot of carbs for fiber, they think you are doomed?  Has anyone ever heard of fruits and veggies for fiber?  That is where I get most of my fiber from and constipation is never a problem.  I do eat some whole grain carbs, of course, but way more fruits and veggies. Eat a salad and see what happens......:)

 

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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