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Gluten sensitive?


LaurynGF

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LaurynGF Newbie

I'm new to this forum so I apologize in advance! 

I'm a 22 year old female. I recently was seen by a gastroenterologist because I've had adominal pain with distention/bloating and change in bowel habits that was onset about 11 months ago. At first I assosicated this with the stress of school and a dirty diet that consisted of mostly takeout but I realized it was much more serious because it's been persistent and hasn't gone away..... ever. 

My GI specialist ordered labs and sent me for a abdominal ultrasound and said everything came back looking good on my blood work and ultrasound other than an overgrowth of "bad bacteria" she gave me an antibiotic and reassured me that I didn't test positive for celiac. My GI doctor is under the impression that this is either IBS or that I'm very much "gluten sensitive" so now I have to do a trial and error of cutting gluten from my diet completely for 8 weeks. My chief complaint is the adominal bloating associated with pain. My question is has anyone experienced common symptoms, and did going gluten free help? 


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GFinDC Veteran

Hi Lauryn,

Do you know what tests they did for celiac disease?  There are several antibodies that are part of the complete celiac disease test panel.  But often a doctor will do only the initial ttg IgA screening test and call it a day.  The ttg IgA is a good test, but it doesn't catch every celiac.   Maybe you can get a copy of your test results for celiac disease and post them in this thread?  The results should include the actual tested values and also a range of values to check them against.

I don't suggest giving up on celiac testing until you are sure they did the full celiac disease panel, including the DGP IgA and DGP IgG.  Plus total serum IgA which is tells if your body makes IgA antibodies at all.  Some people do not make much IgA at all.  In those people the IgA tests are useless and they have to look at IgG instead.

Welcome to the forum Lauryn! :)

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    • trents
      But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
    • Healthierbody2026
      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
    • trents
      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
    • trents
      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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