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lizzy

Lymphoma And Celiac

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hi as anyone else had a ct scan done on the chest and found swollen lymp nodes. i had a ct sacn done which showed large nodes measuring 4.2 cm and am concerned. i have been doing research and it seams they can be caused by t cells attacking the nodes . arent t cells found in celiac dieases too ? i had to have another ct scan done on monday as the doctor is monitering them fo growth and am still waiting on the results. i was just wondering if anyone else had the same problem too

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hi elisabet

it was done in june when i had my first seizure i went into er and they kept my in to evaliate me and did a whole ct scan on my body they where checking the artiers to make sure they wasnt blocked causing me this tremor i have, what happened was last week i got a hold of all my records because am fed up of not being told the whole story which to my findings the doctor who read the ct reported these large nodes and to be followed up but i wasnt told about it . so i faxed a copy up to my primerycare doc who took a look and wasnt happy he wasnt infomed so hence another ct and chest xray last monday to see if they have grown or have gone. also on the same report i found out that a tubal i had done that the metal clips had all come off and it says they are all in my pelvis area and not where they where suppose to be. so am now having an ultrasound done next week to locate them. this again wasnt told to me i found out just last week and this was done in june. i did put a message up about the rights of telling your patients if something is picked up on a ct scan even if its not related to what they looking for. liz

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Hello Lizzy,

I am sorry that you are having such difficulties right now, but I am so glad you posted your message.

Here is a link to a brief article about non-intestinal lymphomas and celiac disease: http://members.shaw.ca/ron_hoggan//maligan...celiac_dise.htm

I am "gluten sensitive" and apparently it is unlikely that I have the intestinal damage associated with celiac disease; however, I have experienced lymph node swelling when I eat gluten. In fact, I am still recovering from an attempted gluten challenge and even after being gluten free for several weeks the lymph glands under my arms are still painful and sore. So far, two gastroenterologists have been utterly clueless when asked if the swollen lymph nodes could be associated with celiac disease or gluten sensitivity. My mother’s brother died of lymphoma at a young age so I think this is a valid concern.

Lizzy, I am wishing you the best.

DQ1Squared

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The fact sheet on the The University of Maryland Center for Celiac Research website says that untreated Celiac patients show the long term effects of Celiac can lead to intestinal lymphoma.

Health Link says that symptoms of celiac disease may include seizures. (Which I experienced prior to being diagnosed). :(

I am sorry for all that you are going through. This group helps...just knowing that you are not going through it alone.

Cindy

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hi thanks for your advice i got my results back and my chest ct showed that the nodes had gone down some since i have only been gluten free for 2 months now they think its because of that that they arnt as big sio we are keeping 6 monthly checks on them. also i have seizures too from the gluten sensitivity and i still keep having them even though i am gluten free. so i am wondering if i have epolepsey am going to talk to me doc about it. alot of my other stuff got better some went away but not these which leave my family worried espeacily when am out driving liz

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A CT scan showed my abdominal lymph nodes and spleen were enlarged. My primary care dr. sent me to GI spec. who did a biopsy and confirmed a previous diagnosis by my dermatologist that I had celiac disease. The GI said that my enlarged lymph nodes could be caused by celiac disease and that we should monitor. I am on a gluten-free diet now and hope that helps all my issues. Hang in there!

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Guest CD_Surviver

they are connected but it is hard to find a lot of info on them bieng connected b/c i was going to do my research paper on them but could not find enough info.

Lauren

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