Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):

  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.


    • Sign In
    • Sign Up

Is this DH? please help :(

Rate this topic

Recommended Posts

Hello, I have had rashes all my life, positive nickel allergy, but I avoid it. I have had both the patch test and the prick test done by an allergist last summer with everything negative, but nickel, which I knew going in.  She suggested gluten, despite the fact that all blood tests were negative for celiac. I know you can be positive DH with neg blood tests and I am so sure its DH. I had a biopsy done last summer, but I was not told beforehand that being gluten free, or treating the rash with medication before the biopsy could cause a false negative, so it is completely possible that I was doing both of those things, I just cannot remember. I want to get another biopsy done but I am not sure I can afford it because I do not know if it is covered under my insurance :(

My rash is, mostly, bilateral. I get it on my forearms, legs, butt, thighs, sometimes breasts, sometimes neck. If I treat it with topical medicine it will go away somewhat/be less itchy, but if I stop medicine for a day or so it will be awful and itchy and painful. Also, when/if the rash goes away I am left with darker areas of hyper pigmentation which I read could be a sign of DH. Does anyone else get that? For some reason I think it might get worse in the summer.... maybe I am just more aware of it because of the fact that I can't show my skin during times that you are supposed to....

I am currently eating a diet containing gluten because gluten free food is so expensive and I want a better confirmation before I spend all that money on gluten free food. I am a vegetarian and a college student, so I do not have a lot of money to be even more picky about food. 

If anyone has any input on my image, or has an opinion on if you think this is DH I would really appreciate it. 


Edited by Predoc
adding more info

Share this post

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

It could be dh & then again, it could be many other rashes. The surest way to know is to get a dh biopsy. Yes, you have to be eating a gluten diet for 3 months if you have been eating gluten free. This next is VERY IMPORTANT ~~~~ the biopsy must be taken from clear skin adjacent to an active lesion. If the biopsy is taken ON the lesion then it is NOT a dh biopsy. You should check with your insurance company about their covering the biopsy. I would think they would since it is a diagnostic test. 

Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

Share this post

Link to post
Share on other sites

My dermatologist told me it can take 3-4 biopsies to get a positive reading. She also told me to call her as soon as a blister starts to form and she will biopsy. It only takes 2-6 hours from when I eat gluten to when a blister starts to form. 

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now