Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

scholoring

Recommended Posts

scholoring Newbie

Sorry my titles so long but its hard to really shorten that. I'm trying to get advice for family planning, I guess. I am 26years old and have two little girls ages 6 and 3. They are both smart and strong but they have both inherited medical issues. My 6 year old especially. She has Celiac, dairy intolerance, some unknown allergy causing eosinophilic esophagitis (inflammation in her esophagus), and it seems she may have Periodic Paralysis like I do (causes temporary weakness/paralysis). She also has asthma related to animal dander. She had to get ear tubes in and her adenoid removed because her ears wouldn't release all the fluid it collected so she couldn't hear properly and her adenoid was swollen and causing problems. Shes been to the doctor way more than average and obviously, that's tough to deal with. My younger daughter is dairy intolerant and the doctor thinks she also has Celiac as well as a fairly benign skin condition called kopilaris pilaris (or something like that, maybe if she guts gluten it will go away*.*).

With all of this plus my own conditions, (Hashimoto's Thyroiditis, Celiac, Normokalemic Periodic Paralysis) I'm wondering if I would be doing a disservice to my family and myself as well as any new baby if I were to get pregnant again. Like logically, it seems having a baby knowing all the risks now, would be a bad idea. Tough pregnancy's plus tough recovery's plus baby potentially being born chronically ill; probably shouldn't anymore, right?

So logically I know I shouldn't, but I'm having a hard time coping with the idea of never having a baby again. I am a lot healthier than I used to be, but being pregnant has a way of beating up the body so thinking about that has been helpful in preventing me from taking that step. But still, I'm disappointed. I would have liked to have like four kids and as it is it looks like I'll never get the chance to have those twins I always dreamed of:) (I'm a twin so I love:)

Has anyone else here had to deal with this? What have you done to cope with it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
(edited)
1 hour ago, scholoring said:

Sorry my titles so long but its hard to really shorten that. I'm trying to get advice for family planning, I guess. I am 26years old and have two little girls ages 6 and 3. They are both smart and strong but they have both inherited medical issues. My 6 year old especially. She has Celiac, dairy intolerance, some unknown allergy causing eosinophilic esophagitis (inflammation in her esophagus), and it seems she may have Periodic Paralysis like I do (causes temporary weakness/paralysis). She also has asthma related to animal dander. She had to get ear tubes in and her adenoid removed because her ears wouldn't release all the fluid it collected so she couldn't hear properly and her adenoid was swollen and causing problems. Shes been to the doctor way more than average and obviously, that's tough to deal with. My younger daughter is dairy intolerant and the doctor thinks she also has Celiac as well as a fairly benign skin condition called kopilaris pilaris (or something like that, maybe if she guts gluten it will go away*.*).

With all of this plus my own conditions, (Hashimoto's Thyroiditis, Celiac, Normokalemic Periodic Paralysis) I'm wondering if I would be doing a disservice to my family and myself as well as any new baby if I were to get pregnant again. Like logically, it seems having a baby knowing all the risks now, would be a bad idea. Tough pregnancy's plus tough recovery's plus baby potentially being born chronically ill; probably shouldn't anymore, right?

So logically I know I shouldn't, but I'm having a hard time coping with the idea of never having a baby again. I am a lot healthier than I used to be, but being pregnant has a way of beating up the body so thinking about that has been helpful in preventing me from taking that step. But still, I'm disappointed. I would have liked to have like four kids and as it is it looks like I'll never get the chance to have those twins I always dreamed of:) (I'm a twin so I love:)

Has anyone else here had to deal with this? What have you done to cope with it?

Reading your post, I would say you should not have more children.  Sounds like you have more than you can handle in your life right now. It would be unfair to a baby.

i say that because that is how I decided if I should have another baby.   I had what I could handle between myself , my hub and my kids.  I didn’t want to add more than I could deal with and not be there for any of the kids or spread too thin.  

 

Edit it to add - you are only 26, maybe something less permanent for a few years? Then see how you feel 

Edited by kareng
Ennis-TX Grand Master

I would go with something less permanent, with the way gene editing is going, probably in the next 10-20 years you can have the genes edited too remove genetic diseases. I know I am messed up, and will not try to reproduce til we can edit the genes.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    3. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    4. - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
×
×
  • Create New...