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Waiting For Results For Blood Tests

jadesmum

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jadesmum Rookie
jadesmum
Posted

Hi

My daughter (18 months) has celiac disease, a really bad case of it too, her villi were completely gone when she did the biopsy.

I got the bloods done yesterday and have to wait for Monday for the results, I have felt the last five years something just hasn't been right here are the details.

5 years ago - got really bad bloating and put on 15 kilos pretty quickly, also started getting depression - I put it down to a stressful job. I was diagnosed with Irritable Bowel Syndrome as I was constipated (basically they didn't know what it was so put it down to that)

up to now - gained more weight as I have had two children since, can't seem to shift it. Also suffered from Post Natal Depression and often feel flat. I also get really tired a lot of the time. I also have a sluggish digestive system and can get constipated often.

I am not really expecting it come back as positive as from what I know Celiacs usually suffer from weight loss not gain is that right? And they usually have runny stools not constipated? Anyway do you think there is a chance, or is it really unlikely?

Belinda

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nettiebeads Apprentice
nettiebeads
Posted

I think it's very likely. Your daughter had to get her celiac gene(s) from somebody right? I never had the weight loss aspect of the disease. And right now I'm working on losing over 50 lbs. So no matter what the blood work indicates, you might want to try the gluten-free diet anyway. Nothing to lose, lots to gain!

Guest nini
Guest nini
Posted

I had GAINED tons of weight with my celiac... lol... (my celiac!!!) I've been gluten-free now for almost 3 years (in March) and since going gluten-free I've lost about 100 pounds give or take a few... so yeah, weight gain can def. be part of it.

Even if your blood tests come back negative, go ahead and try the diet and see if it helps you.

Guest Obedientmuse
Guest Obedientmuse
Posted

I've asked that question too... I not thin so how is it possible? Especially when I have the opposite problem. What's worse than being bloated AND constipated, I'd like to know!

My health practitioner told me that we all don't fit the textbook definition of anything. It's textbook, typical, of what to look for but we bring our own issues along with the dis-ease.

I hope this helps. When I went gluten-free about three years ago (not counting my relapse this holiday) I lost about 30 pounds. I'm still struggling with the last 10-15 but this might be my year! I'm hoping to find my stride with my food and achieve some balance where I have the energy to exercise on a regular basis and not eat those things with damage my energy or my body.

Best of luck...

jadesmum Rookie
jadesmum
Posted
  • Author

Thanks for your replies

I didn't realise that there were so many different symptoms.

nini - wow 100 pounds that is incredible - wonder how the doctors explained that one lol.

I think I am going to go gluten-free even if the tests are negative just to see if it improves my life.

Oh if the bloods are negative, I read somewhere it may not be conclusive? What should I do then, insist on a biopsy?

Belinda

Guest nini
Guest nini
Posted

LOL, one of the Dr.s I went to before my dx, told me that I just needed to lose weight (DUH!) and that I "just had IBS" and that I needed to eat MORE WHEAT! I went on the diet he reccommended and in one week I GAINED 10-15 pounds... I screamed at this idiot and quickly found another Dr.

jadesmum Rookie
jadesmum
Posted
  • Author

lol Maybe we went to the same dr! Except mine didn't say eat more wheat, why on earth would anyone need to eat more wheat? weird

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Guest nini
Guest nini
Posted

I dunno, he was a crackpot anyway...

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