Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Being Tested


pocohontis

Recommended Posts

pocohontis Newbie

My daughter has been ill for the past month and at first started with the stomach virus that's going around and treated for croop and then started having stomach pains. We took her to a specialist and with her history of acid reflux a couple of years ago he's testing her for Celiac disease. Her pains sometimes are so bad she cries. She's 10 years old. My mother inlaw said she had terrible stomach problems when she was child but has so many operations including her intestines that nothing bothers her anymore. She is so skinny, since being sick the start of Jan. she has dropped 5 pounds and it took 2 years to get her to weight 50 pounds. It all makes sense, this celiac disease and what she's gone thru. She loves pasta and eats alot of it. Did anyone have the pain in the lower stomach?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DonnaD Apprentice
Did anyone have the pain in the lower stomach?

Yes my 11yo did, just below her belly button and occasionally in her back/kidney area, and a reflux. they found celiac 'by accident'. She was on 50th centile at birth and dropped to 3rd at 3 months. she was 128cm tall and only 25Kilo (about 50ibs) She was better within about 5 days gluten-free but did have a lot of withdrawl symptoms.

I hope this is of some help

RiceGuy Collaborator

The symptoms you describe also sound like those caused by the adenovirus. Check Open Original Shared Link for a good description.

Given the link between the virus and gluten intolerance, I'd suggest a gluten-free diet immediately, if you haven't already started. Don't worry about the pasta or other foods. You can use Tinkyada rice pasta, which is truly good. She might not even know the difference. Keep in mind that it is often the case for gluten intolerant individuals to actually become "hooked" on wheat products. I myself could not get enough of the stuff, and could not imagine doing without. That it seems was the chemical addiction talking. Once gluten-free for awhile, the cravings were gone, and I only occasionally have the rice pasta. It's as good as ever, but it doesn't set off a desire for more.

It's weird how harmful food can be a drug.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,901
    • Most Online (within 30 mins)
      7,748

    Ginger Bessonette
    Newest Member
    Ginger Bessonette
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
    • plumbago
      The last time my vitamin D was very low, according to a lab test, was before I was diagnosed with celiac disease. I've been supplementing ever since, and now the numbers on the lab tests are within their normal ranges, oftentimes way above. I've also been supplementing with methylcobalamin (B12) since I was low before diagnosis in 2010, and now I'm fine. I'm surprised I ever requested a folate level, but I did, in 2019. Result 9.4 ng/mL (range >3.0).    
    • Captain173
      Do you have any links that show studies where NCGS and/or infections have caused high Ttg iga levels.  I've yet to see anything that truly supports this. Everything I've read says the high levels are celiac specific.
×
×
  • Create New...