Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I feel bad...


Azur

Recommended Posts

Azur Rookie

I'm in my 2nd week of gluten free diet, but I feel bad, every night I get some kind of "attack", It's not really attack 1st I start feeling butterfly's in my stomach and after I feel everything around me is faster and I start to forget stuff and my hands start to shake(just a little shaking) and they get cold, and I get so many question's in my head about environment around me and everything else (I know it sounds crazy), but it goes away after few hours and It has been happening to me for about 1 week, I googled a bit and and I found out that these symptoms are something called "brain fog", did anyone had same withdraw symptoms after going gluten free or it's just me ?

I'm a 20y/o basketball player, and this has never happened to me before, I feel really bad after going gluten free, I would really like to get back on training but this is kind of stopping me, will this symptoms go away?

Please if you have something to share with me write it down below, thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

In some people gluten sensitivity manifests itself primarily as a nerve disease affecting the brain and the nervous system. The good news is if you are in this category and you stay one hundred percent gluten-free, the symptoms should go away over time. Here are some articles that you might find helpful: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ 

Scott Adams Grand Master

Be sure to talk to your doctor about your symptoms.

Ennis-TX Grand Master

In regards to the withdrawal....gluten withdrawal is honestly like getting off drugs, the withdrawal in some people is really bad. I can honestly say the gluten withdrawals were worse then trying to cold turkey get off Methamphetamine

 

Azur Rookie
5 minutes ago, Scott Adams said:

In some people gluten sensitivity manifests itself primarily as a nerve disease affecting the brain and the nervous system. The good news is if you are in this category and you stay one hundred percent gluten-free, the symptoms should go away over time. Here are some articles that you might find helpful: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ 

Thank you

 

2 minutes ago, Scott Adams said:

Be sure to talk to your doctor about your symptoms.

I'll visit my doctor but he's out of city for 2 weeks so I had to post this, I just didn't add that this like "attack" happens at night time(8pm) and disappears in next 5 minutes and I'm fully aware of my environment and people around me and everything else, but,  just in that time, in that 5 minutes I feel bad, I kinda feel like I cant follow with conversation that is going on between people, I feel like I would vomit but I never do, and after 15 minutes I get back to fully normal level.
I'll see some of the articles that you sent me up there and find something for me, thank you!

 

 

Azur Rookie
8 minutes ago, Ennis_TX said:

In regards to the withdrawal....gluten withdrawal is honestly like getting off drugs, the withdrawal in some people is really bad. I can honestly say the gluten withdrawals were worse then trying to cold turkey get off Methamphetamine

 

Exactly! I just kinda got worried because my whole life I've been training, eating healthy and this happens to me, first time when I felt bad I was so scared that I'm going to die, but of course it didn't happen, I also agree with you and I think it's just a unpleasant way of getting out gluten from my system and I hope it'll end soon. Thank you a lot!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...