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Women Who Is "celiac" Free After Going Off Diet

Harriet

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Harriet Newbie
Harriet
Posted

I was concerned when I read the recent article about the woman being symptom free for 15 months as nothing was said about the state of her vili. I was diagnosed with celiac as t 7 year old child and put on a fat-free, starch-free diet (in the 1950's) :blink: I was on this diet until my early teens. At that time, I was doing so well that they gradually weaned me from the diet and I showed no symptoms. Everyone thought I was fine. Then about 6 years later, I attended Washington U and a doctor was doing celiac research. When I went to see him, he said from the way I looked he doubted I had ever had celiac. However, he was curious and took a biopsy and enzyme tests. I had essentially no vili at that time and only 1/3 the normal enzymes for maltose, glucose,and lactose. It was amazing to feel so well and be told that. I have been on a gluten-free diet since because even if you don't have symptoms, one's intestine can still have problems. I have had biopsies since then and the vili look great now :)

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tarnalberry Community Regular
tarnalberry
Posted
I was concerned when I read the recent article about the woman being symptom free for 15 months as nothing was said about the state of her vili. I was diagnosed with celiac as t 7 year old child and put on a fat-free, starch-free diet (in the 1950's) :blink: I was on this diet until my early teens. At that time, I was doing so well that they gradually weaned me from the diet and I showed no symptoms. Everyone thought I was fine. Then about 6 years later, I attended Washington U and a doctor was doing celiac research. When I went to see him, he said from the way I looked he doubted I had ever had celiac. However, he was curious and took a biopsy and enzyme tests. I had essentially no vili at that time and only 1/3 the normal enzymes for maltose, glucose,and lactose. It was amazing to feel so well and be told that. I have been on a gluten-free diet since because even if you don't have symptoms, one's intestine can still have problems. I have had biopsies since then and the vili look great now :)

After reading the full article, I learned they did to biopsies and so no intestinal damage. That's not to say it won't pop up in a few more years.

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