Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Accident


Mom22

Recommended Posts

Mom22 Apprentice

Our 9 year old son has been gluten-free for 2 months and diagnosed with celiac disease via biopsy. He attends an afterschool care program through our local Y since both my husband and I work full-time. Since he became gluten-free, we have always packed his lunch and snacks for the day. The Y has been informed in writing that our son has celiac disease and not to give him any food as he is only to eat what we have provided. Our son has done very well with this transition of diet change and I have become very creative in snacks and finding things that are gluten-free that he likes. My husband went to pick our son up yesterday and there are 4 teachers that are there on a regular basis. One of his teachers is on vacation and there was a sub. Apparently, the sub gave our son a piece of chocolate cake and told him that it was ok for him to eat. He even questioned her about it as he knew it wasn't safe, but she assured him it was. He ate 3 bites before another teacher saw what had occurred and immediately stepped in and took the cake away and told the sub that he couldn't have it. The sub wanted to argue with my husband when he spoke to her about this asking if we had put this in writing. He advised her that we had. Then, she told him that she knew that the cake was gluten free because she knew what gluten free meant. My husband was puzzled as it is obvious that cake has flour, which has gluten. So, he asked her what she thought gluten free meant. Are you ready for her reply... She believes that gluten free has to do with cholesterol!! :angry: My husband gave her a nice lecture on gluten free and what she had just done to our son's body. I can't believe it!!! I'm glad that I wasn't the one that picked him up as I was livid when my husband told me the story and probably would have told the sub she was an idiot. I am calling the Y program today and speak with the director. My husband assured our son that this wasn't his fault as he felt he had done something wrong. Does anyone have any suggestions on how to keep your children gluten free when they are not with you? I thought we had covered all of our bases. Thanks for reading and letting me vent.

Mom 2 2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

You did cover all of your bases. The sub was wwwaaaayyyyy out of line! She had no business feeding anything to any of the kids without asking one of the regular teachers about it first. I used to do home day care, and I never let anyone else feed the kids that I knew had food problems! Cool your jets, talk to the head honcho at the Y, and let them take care of the problem with the sub. You will have your hands full taking care of your son!

Beantree Rookie

Dont you LOVE how other folks are more educated about your dietary needs than you are!!!

I have a SIL who is a nutritionist. has her masters in it. and she insists that my dd has teeth that are pitted and chipped because I do not give her milk. It could not possibly be because she has celiacs AND a dairy intolerance could it???????

Ugh!! They think we are freakin idiots.

This story got my knickers in a freakin wad!!! I get so angry with folks giving kids food. UGH!

Mom22 Apprentice

I did speak with the Y director and by that time had cooled my jets. She was very understanding and will take additional measures that this did not happen again, as well as, have a talk with the sub. Yesterday, when my husband picked up our son, he received an apology from the sub.

Mom 2 2 :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,868
    • Most Online (within 30 mins)
      7,748

    Joyetta
    Newest Member
    Joyetta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shining My Light
      Thank you @trents! This is all sound advice. In 2022 I did have a biopsy done with the EGD: SPECIMEN: (A) DUODENUM, BIOPSY (B) GASTRIC BIOPSY(C) GASTRIC POLYP, BIOPSY(D) ESOPHAGUS BIOPSY (E) ESOPHAGUS BIOPSY This would have been when the candida was found.  If I understand right it’s the duodenum they take a biopsy of. Nothing was mentioned about Villous atrophy however they were not looking for that particularly.    Something that stumps me is the correlation between symptoms and damage. One seems to equal the other. I have yet to see damage with “silent celiac”. Not saying it doesn’t exist.  Also super curious on other symptoms that would improve based on a gluten free diet. Obviously silent celiac wouldn’t have an improvement in GI symptoms but that is all I have read any data for. No one saying things like my anxiety went away or my headaches and joint pain are gone.    I see why it would be a “gluten challenge” since eating 4-6 slices of bread daily is a challenge to do. 😳 I would replace that with cake 🍰😉 
    • xxnonamexx
      I know I haven't been tested for Celiac yet. But If I took a blood test would they be able to say what I am deficient in as far as vitamins and minerals so I can see what supplements to take or is it not that easy to figure out what is needed to balance out vitamins/minerals. 
    • trents
      All that is exactly why you should have an endoscopy with a biopsy of the small bowel lining done. It's a very simple procedure and in the US they put you under for it so there is no discomfort. You don't even have to do a cleanout like you do for a colonoscopy.  It might also be wise to wait a few months and get the tTG-IGA checked again if nothing else. If it elevated now due to some temporary infectious process, it should not remain elevated. But a biopsy would distinguish between IBD and celiac disease. And remember, the diagnosing of diseases is often not a black and white, cut and dry process. You often have to weigh all the evidence and just go with what is most likely the cause. When tTG-IGA is elevated, the most likely cause is celiac disease. And the gold standard test for diagnosing celiac disease is still the endoscopy with biopsy. But if you decide to go for further testing for celiac disease of any kind, you must not first embark on the gluten free diet.
    • knitty kitty
      I understand your exasperation.  My doctors were totally clueless.  Me?  I couldn't believe it was so simple.  I had studied nutrition before earning a degree in Microbiology because I was curious about what the vitamins were doing inside the body.  It's about giving the body the nutrients it needs to heal.  Read my blog for more of my journey...  Do take the time now to make some changes.  It's a matter of putting on your own oxygen mask first before you do anything else.  I regret I didn't do more to take care of myself first.  It's amazing how quickly ones life can unravel if in poor health. Simple things you can do immediately that will help are: Stop consuming oats, dairy, and corn. Keep a food-mood-poo'd journal so pinpointing problematic foods is easier. No alcohol. Avoid nightshades.  Do cut back on or eliminate processed gluten free facsimile foods.  These are not nutritious.  They are not enriched with vitamins and minerals like their gluten containing counterparts.  They contain saturated fats and excess fiber that can be irritating to the digestive tract.   They are high in simple carbohydrates that promote Small Intestinal Bacterial Overgrowth (SIBO). Do focus on meat, veggies, fruit and healthy Omega 3 fats (olive oil, avocado oil).   Do make stews and roasts overnight in a crockpot.  Make small batches.  Leftovers increase in histamine the longer they are left.   Do talk to your doctor about supplementing with a B Complex and Benfotiamine (a form of thiamine shown to promote intestinal healing).  There are eight essential B vitamins.  They work in concert together like an orchestra, so they need to be supplemented together.  Taking extra thiamine and Benfotiamine have been shown to be beneficial.  Weight loss can be a symptom of insufficient thiamine. I believe you mentioned you were low in some vitamins. Can you tell me  which ones?  
    • Shining My Light
      @trents - sorry, I know that didn’t make sense. I need to get better at rereading the things I write.    The people I know of that have a gluten sensitivity or intolerance have tested negative for celiac. They can’t have gluten of any kind without having a reaction. That to me isn’t helpful. If I reacted to gluten I wouldn’t eat it regardless of it being celiac or not. I’ve come to learn the real issue with celiac is the damage, not the intolerance.    Gliadin Deamidated is another test I’ve seen that I wanted to get done. Also, the genetic testing. HLA-DQ2 and HLA-DQ8. Although my liver levels are not elevated now, I went through a time when they were. I would say maybe 7 years ago. I also had major GI symptoms at that time. They had ordered a EGD then but I chickened out. This makes me even more confused. I would think that if celiac were the cause my liver numbers wouldn’t have improved. Which again makes me think more of IBD being the cause of my TTG levels being elevated.  One thing that would make me motivated above all else is the neurological aspect. I’m still trying to dive deeper into that which has me the most interested. I think GI issues are an obvious symptom, it’s the connection in the rest of the body, particularly brain function that is most intriguing.         
×
×
  • Create New...