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Celiac & dumping syndrome

Rachel C

By Rachel C
in Related Issues & Disorders

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Rachel C Newbie
Rachel C
Posted

I’m 49yrs old & was diagnosed with Celiac disease in December- funny this was that I wasn’t really experiencing typical symptoms- it was discovered through some bloodwork that they were checking on because I have Raynauds. I did have an EGD with biopsies that determined that I did indeed have it. Since going gluten-free, I’ve now experienced some crazy diarrhea & I seem to have Dumping Syndrome which literally has me running to the bathroom about 30 mins after I eat! Is this normal??? I’ve never had this problem before! I’m seriously thinking about going back to eating Gluten!

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Scott Adams Grand Master
Scott Adams
Posted

If you have celiac disease eating gluten would not be helpful towards your goal, which I hope is your health and well-being, right?

I would keep a food diary, and consider something more akin to a Paleo diet where you eliminate starches and sugars.

cyclinglady Grand Master
cyclinglady
Posted

Raynauds.  My kid has it.  Blue fingers and toes.  The only one to wear wool socks in the summer.  
 

 I had anemia all my life. I have two anemias actually. One was genetic.  Doctors blamed my Thalaseemia for my low Hemoglobin.  They blamed menstruation for the low iron.  I went for a colonoscopy when I hit 50 and the GI took one look at my chart and ordered a celiac disease panel.  
 

I had no GI issues in the years prior (had plenty when I was young, but my body adapted).  After my diagnosis, with gluten exposures, I developed GI issues.  I kept a  journal and found a few food intolerances (onions, garlic, lactose).  The lactose intolerance resolved with healing and the others did not.  
 

Look to your diet, do not eat out until you are well, avoid processed foods, and try to identify food intolerances.  Welcome to the forum.  

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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
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      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
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    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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