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Gluten Sensitivity Question

Claire

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Claire Collaborator
Claire
Posted

Does anyone have diagnosed Gluten Sensitivity and a negative endoscopy?

If so I would appreciate knowing how close together you had the tests and where you had the tests.

Thanks for your help. Claire

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Rachel--24 Collaborator
Rachel--24
Posted
Does anyone have diagnosed Gluten Sensitivity and a negative endoscopy?

If so I would appreciate knowing how close together you had the tests and where you had the tests.

Thanks for your help. Claire

I'm not sure if I understand the question. Are you asking if anyone was diagnosed *Celiac* with positive bloodwork but negative biopsy? If so, there's lots of people on this site. Or are you asking about non-celiac gluten sensitivity?

This is my history:

Oct. 2004 -2 weeks after initiating the diet I had bloodtests done through my HMO. (antigliadin IgA and tTG) Results were negative. I went back on gluten and got extremely ill, lost 25 lbs.

I went gluten-free again April 2005. Got tested through Enterolab August 2005. (Positive IgA, tTG and malabsorption, 2 gluten sensitivity genes, no main celiac genes)

Oct. 2005 I had the endoscopy after having been on the diet 6 months already. I did not go back on gluten for the test. The biopsy was negative which was what we expected anyway.

Claire Collaborator
Claire
Posted
  • Author

Asking about non-celiac gluten sensitivity - wanting to know if anyone has this diagnosis as well as a negative endoscopy. Claire

Rachel--24 Collaborator
Rachel--24
Posted
Asking about non-celiac gluten sensitivity - wanting to know if anyone has this diagnosis as well as a negative endoscopy. Claire

Yeah I had negative biopsy but since I'd been off gluten 6 months its pretty worthless info. If someone were to have had a positive biopsy it would be labeled Celiac...otherwise its whatever you or your doctor decide to "name" it.

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