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Recently Diagnosed by my GP


Tammy1969

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Tammy1969 Newbie

On April 29, 2022 I went in for routine blood work because I’ve had thyroid issues since the mid-late 90’s and I also have RA, Cholesterol issues, acid reflux with esophageal ulcerations at times when it hadn’t been easily controlled. I’ve also had my gallbladder removed in the late 90’s and that’s when the hiatal hernia was discovered. So I’ve had my share of health issues. These things were my normal though because I’ve learned to live with them and underplay most of the struggles. But, there were things in my blood work that alerted my GP to further investigate. She set me up to get the specific blood tests that indicate Celiac Disease. I’m so grateful for her proactive approach because 3 days later the results indicated Celiacs. I’m now awaiting my appointment with a specialist to do further tests, a biopsy and get further instructions as well. So this is very new and a bit overwhelming because celiac disease was not even on my radar. Luckily I’ve found many websites and forums that have helped to ease the anxiety associated with the unknown. I’m glad to have found this site!! Tammy


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trents Grand Master

Welcome to the forum, Tammy!

Make sure you don't start a gluten free diet before the biopsy is complete.

We are very pleased that you have found this forum to be helpful.

Scott Adams Grand Master

Yes, welcome! On the positive side, your celiac disease diagnosis would explain many of the symptoms and issues you've been having, and rather than just using prescriptions or over the counter drugs to treat your symptoms, a 100% gluten-free diet will likely provide actual relief.

When the time comes, this article will be helpful:

 

Also, you should be eating at least 2 slices worth of wheat bread per day for at least 2 weeks before an endoscopy, which is the likely next step in your diagnosis.

Tammy1969 Newbie
57 minutes ago, Scott Adams said:

Yes, welcome! On the positive side, your celiac disease diagnosis would explain many of the symptoms and issues you've been having, and rather than just using prescriptions or over the counter drugs to treat your symptoms, a 100% gluten-free diet will likely provide actual relief.

When the time comes, this article will be helpful:

 

Also, you should be eating at least 2 slices worth of wheat bread per day for at least 2 weeks before an endoscopy, which is the likely next step in your diagnosis.

Thank you! Yes I’ve been researching a lot so that I’m prepared when I see my specialist. Thank you for the article! 

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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