Im back from the doctors heres my issue with gluten

[Lindquist]

Hey!
The last time I ate gluten I had diarrhea and I had a stomach ache like knives in my stomach and I later threw up and got a headache. Is that the reason I am gluten intolerant? It happens to me every single time someone gives me cereal I can't stand. The tests at the doctor did not show celiac disease, but that I am sensitive to gluten was all that was said. I belong to blood group 0+, it says that blood group 0 is sensitive to gluten but does not have celiac disease. The other blood groups tolerate gluten better. My mother had blood type 0, she also didn't tolerate gluten very well, she vomited and felt really bad, she also got diarrhea and headaches and a really bad stomach ache like IBS. I have been diagnosed with IBS by the doctor. But I don't think IBS is causing the problem. I think gluten causes the IBS symptoms am I right or am I wrong?

[trents]

36 minutes ago, Lindquist said:

Hey!
The last time I ate gluten I had diarrhea and I had a stomach ache like knives in my stomach and I later threw up and got a headache. Is that the reason I am gluten intolerant? 

Welcome to the forum, Lindquist!

You have it backwards. If you are gluten intolerant, that would be the reason for your GI distress and headache.

Can you be more specific about the tests that were run by your doctor for detecting celiac disease? What were the names of the tests and what were the numerical results and the ranges for the tests as to what is negative-positive. Can you post that information?

Also, had you bee cutting back on gluten when the blood tests were run? For those tests to be valid you must have been consuming normal amounts of gluten for about two months.

There are two gluten-related disorders. One is know as celiac disease. The other is known as NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. The difference is that with celiac disease, gluten causes damage to the villi that line the small bowel but with NCGS this doesn't happen. There are blood antibody tests for celiac disease but no tests for NCGS. For a diagnosis of NCGS, celiac disease must first be ruled out. "Gluten intolerant" is an umbrella term that can refer to either celiac disease or NCGS.

Celiac disease is not the same as IBS but IBS is more common in the celiac population than in the general population.

[Lindquist]

transglutaminas is the test of gluten i was under <1 and not show celiac disease. I think i have that NCGS you told about. But i get so pain in stomach after few days gluten come in my stomach, tonight i vomited, and i have really pain in stomach right now.

i don't know what the test is called in US. Im in Sweden

When doctors not find the problem, they give you IBS because they don't nothing what you can have. So IBS they put , but IBS is just a symtom for stomach problem. I know i have issue with wheat, milk protein, rye, barley, citric acid, histamines

 

[trents]

But you didn't answer my question. In the weeks before the blood draw to check for celiac antibodies, were you eating a substantial amount of gluten? 

The Mayo Clinic recommends the daily consumption of two slices of wheat bread daily (or the gluten equivalent) for 6-8 weeks leading up to the blood draw for celiac antibodies. If you were avoiding gluten during this period because of GI distress then your antibody testing was likely invalidated.

Edited October 22, 2022 by trents

[Lindquist]

But i cant eat bread it has yeast and im mold allergic. And you cant eat bread if your not gluten intolerant because if u eat that your villi be bad. I got gluten inside me yesterday from a dinner someone let me in i thought it was gluten free. I feeled it in a few minutes pain in stomach. 

 

Transglutaminas-aK i think it was in sweden i took. No i dont eat bread and cereals in so many weeks you say, i dont want to destroy my stomach for fun.

[trents]

I understand that you want to avoid the pain and damage to your villi. But if you have NCGS, consuming gluten won't damage your villi.

It doesn't have to be bread. Just the gluten equivalent of two slices of wheat bread. It could be pasta instead. 

If you can't or won't eat gluten for the prescribed period then you cannot be tested correctly and you will never know if you have NCGS or if you have celiac disease. Testing for celiac disease would be necessary to separate them as far as a diagnosis goes.

 

[Lindquist]

Maja my doctor say , you have IBS and are senstive for wheat, i recommend you to avoid eating cereals if you have IBS, try to eat gluten free and see if it will be better. I was without gluten and just eat only animals and dairy products, i can eat yoghurt but not consume milk because i am allergic to milk, and not yoghurt that is strange. Maybe i got lactose intolerant when i got gluten in me. And when my stomach is good again i can eat lactose again

[trents]

Yogurt is a fermented milk product. The fermentation process alters the protein and the lactose (milk sugar) so that they can cause less problems for those who are intolerant to cow's milk. This is very common.

But it sounds like you need to become more consistent in avoiding gluten.

This may be of help to you: 

 

[knitty kitty]

@Lindquist,

Blood type tests are different from tests for antibodies against gluten made in Celiac Disease.  

Blood tests don't tell if you have Celiac Disease.

To test for antibodies against gluten, you have to eat gluten for two months in order to have enough antibodies to test.

If you can't eat gluten that long, you can get a DNA test.

The DNA test looks at your genes.  Celiac Disease is a genetic disease passed on in the genes.  If you have the genes for Celiac, you have the potential to develop Celiac.

IBS and NCGS may be precursors to Celiac Disease.  Many people with Celiac are misdiagnosed with IBS and NCGS when they actually have Celiac Disease but the damage is just not severe enough to show typical Celiac Disease damage like flattened villi yet.

There's a difference between lactose intolerance (cannot digest the milk sugar lactose) and milk allergy (allergic reaction to the protein in dairy casein). In either case you should not include dairy in your diet at all. 

Look into the Autoimmune Protocol Diet and Low Histamine Diet to improve your symptoms.

Hope this helps.

[Lindquist]

hi i dna-test should be good that you say to show if its genetic, i can say that fathers mothers had celiac disease she could never eat gluten. 

When i get gluten inside me i get a pregnant stomach, but all of my body is slim. My legs and arms are slim. But i get fluid in legs with more water so legs swelling up so i dont can wear socks. Is that from gluten? Swelling in body. ? on my hair anylize they say i was high in copper and low in zinc, calcium , b6, b12 since i got a b12 deficiency too i need to eat whole life. And low stomach acid they say. I think gluten infect my thyroid as well. Thats why i have hypotyreos. But is it normal to have pregnant stomach after gluten intake? and swolling watering legs? I get back pain in back too. And stools are often constipated or another way.

[trents]

Yes, abdominal bloating is one of the most common symptoms of both celiac disease and NCGS. Not sure about swelling in the lower extremities. The swelling in the lower extremities sounds like a fluid retention problem which can be caused by many things. Have you had your cardiac and kidney function checked lately?

Lindquist, what is your age?

[knitty kitty]

@Lindquist,

You might feel better taking a B Complex vitamin supplement.  Since you are low in other B vitamins, you are probably low in all eight.  A B Complex will give you all eight.

Additional supplementation with Thiamine Vitamin B 1 can help with the constipation and water retention in your legs and stomach.  Thiamine B1 will help your thyroid.  Thiamine will help with the stomach acid.  Thiamine in the form Benfotiamine helps heal the intestinal inflammation.

Hope this helps.

[Lindquist]

Hi again thanks for your replies everyone, i did do a hair anylize test it show that i was high in copper , low in zinc and b12 and folat, b6, low stomach acid. Probably connected to celiac disease? The hair anylize was from texas elements, i do that test here in sweden. I was low in iron as well. I can add some pictures later to show my hair anylize test i did. 

[Lindquist]

On 10/24/2022 at 6:40 AM, trents said:

Yes, abdominal bloating is one of the most common symptoms of both celiac disease and NCGS. Not sure about swelling in the lower extremities. The swelling in the lower extremities sounds like a fluid retention problem which can be caused by many things. Have you had your cardiac and kidney function checked lately?

Lindquist, what is your age?

Im 46 years old, living in northern sweden in Lapland the midnight sun and the saami culture. My ancestors lived only on reindeers food all time. Never eat gluten. I cant eat reindeer meat all time im tired to eat that. My grandparents cooked that all time. They were saamis, they also dry salted meat and let it hang outside on the early feb-march seasons outside let it dry in the air. My grandparents had reindeers and were active reindeer hearders. They past away in 1980-90 so i didnt remember so much of their lifes. But i know one thing they never eat gluten. As my grandmother was gluten intolerant. She just eat that meat almost and grandpa same. My mother never worked with that she had a normal job in town.  I know reindeer meat is high in vitamins, never seen grandparents sick when i was child.

[trents]

To add pictures you would need to start a new post as there is a time limit on editing any existing post.

So, sounds like you need to invest in a gluten free high quality B-complex vitamin product, zinc supplement and Betaine HCl with pepsin (for the low stomach acid). Low stomach acid inhibits the absorption of zinc and other minerals, by the way, such as calcium.