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Megawisdumb

By Megawisdumb
in Coping with Celiac Disease

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Megawisdumb Apprentice
Megawisdumb
Posted

Nothing like starting 2023 with some intrigue…after my post below in Nov stating that my gluten-free diet seemed to make matters worse.  Well I was correct… my Enterolab lab results confirmed yesterday I have significant immunological reactivity to Corn, Egg, Chicken, Oat, Rice, Beef, Pork, Tuna, Cashew, Walnuts, Almond and White Potato.  This is essentially everything I’ve been eating since gluten-free so that certainly explains a lot.  My favorite is the category labeled “Food which there was NO significant immunological reactivity” which stated “None”.   Not really certain what the hell I’m supposed to eat but maybe some cheap dog food as commercials inform me it has none of the stuff above in it.  Satire aside, I've got some appointments schedule to try and get to the root or at least rank them so I can get back to some normal activity.   In some cases Celiac may be the starting point on the journey not the destination.   

 

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knitty kitty Grand Master
knitty kitty
Posted

@Megawisdumb,

What have you been eating?  Do you keep a food diary? Do you eat processed gluten free foods?  

Have you tried the Autoimmune Protocol Diet? 

Do you eat a lot of high histamine foods?

Have you been checked for vitamin and mineral deficiencies? 

Megawisdumb Apprentice
Megawisdumb
Posted
  • Author

I've been strict gluten-free since Sept 2022, with primarily beef, chicken, corn and potato products.  I prepare 95% of my meals at home and take them to work.  Almost no histamine foods.  My blood panels look good as I take a mult-vitamin daily as well add'l B1.  I know at some point I will start to feel better as I had so much more energy when I was a pizza pop-tarts and beer guy.  When I started gluten-free and ate more corn & chicken that anything else and my latest Enterolab test placed these two at my highest reactivity level so currently cream of rice, all sorts of fruits, rice and beef are my energy sources until I can get some relief on the joint pain.  In Sept I could run a 10k, today I avoid the stairs.  I have the AIP printed on my frig as its my target with rice added for now.   I really appreciate the information from members of this page as its been invaluable.  I would still be on my gluten-free only diet if I didn't learn about stool testing and other foods I may be sensitive to from this forum.  I made it to my late 50's without any health issues or diet restrictions until now so I am blessed beyond belief based on the stories I've read on this site.  I have never had any GI issues with celiac only the DH skin and joint pain that has escalated which is the sole reason I posted as it seems much different from classic celiac.     

knitty kitty Grand Master
knitty kitty
Posted

Have you had your Vitamin D level checked?  Supplementing Vitamin D until the level is in the eighties nmol/l is important.  Vitamin D can act like a hormone and regulate inflammation at that level.  

Including healthy fats, Omega Threes, is important to joint health.  Extra Virgin Olive oil, coconut oil, avocado oil are healthy fat options.  Omega Threes are in fatty fish like salmon.  Liver is a source of healthy fats as well as vitamins and minerals.

I take flaxseed oil supplements and can tell the difference by achy joints if I miss a day.  

Hope this helps! 

Megawisdumb Apprentice
Megawisdumb
Posted
  • Author

I have not inquired on the D levels.  My multi V has 25mcg which I'll certainly add a separate D supplement to give it a try as well as the fat friends.  I saw my dermatologist yesterday on the DH followup and she took several blood samples after I told her about my joint pain.  Thank you!

Wheatwacked Veteran
Wheatwacked
Posted

If you are ok with milk, 100% grass fed has omega 6:3 ratio of 1:1 while regular commercial milk is 5:1. White wheat flour is 22:1. Optimum for humans is less than 4:1.

25 mcg of vitamin D is enough to keep you from getting Rickets. For reference, I have been taking 250 mcg a day since 2015 and my blood plasma is steady at 80 ng/ml for over two years now. It took from 2015 to 2019 to reach 47 ng/ml. pipingrock.com is the best value I found on D. $15 for 250 caps of 250 mcg.

MiriamW Contributor
MiriamW
Posted
On 1/26/2023 at 3:33 AM, knitty kitty said:

Have you had your Vitamin D level checked?  Supplementing Vitamin D until the level is in the eighties nmol/l is important.  Vitamin D can act like a hormone and regulate inflammation at that level.  

Including healthy fats, Omega Threes, is important to joint health.  Extra Virgin Olive oil, coconut oil, avocado oil are healthy fat options.  Omega Threes are in fatty fish like salmon.  Liver is a source of healthy fats as well as vitamins and minerals.

I take flaxseed oil supplements and can tell the difference by achy joints if I miss a day.  

Hope this helps! 

Hi @knitty kitty I take a tablespoon of organic high lignan linseed oil daily. I was wondering, would you know if it is safe taking it daily long term? 

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LaLeoLoca Apprentice
LaLeoLoca
Posted

A nutritionist I respect said that until the main food sensitivities are found, the body can keep developing new ones. This is the balancing act In facing now, with severe health issues and few things I can keep down. I hope that as the months or years go by, maybe my body will be less sensitive. For today, I feel how frustrating it is. I hope you find things that are good for you! 

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      iron digestibility

      By knitty kitty · Posted

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    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
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