Ferritin/iron levels, on going sickness

[Kurlykaitlyn]

I’m sorry to be posting again but I’m desperate for some answers I can’t get from a doctor. I’m very stressed out and becoming sad.  
ive been very ill the last month since having an ovarian cyst rupture. The cyst was bleeding and caused my hemoglobin and hemocratit levels to drop. I was in the ER and they kept me until it stopped dropping and they confirmed I didn’t need surgery. A few days after I got glutened. 
Since these events that happened a month ago, I've been extremely fatigued, light headed, and nauseous. Everyday. I’ve been struggling to empty my bladder and have occasional kidney and ongoing stomach pains. Eating has been a major challenge mostly because I just feel too weak and sick to my stomach to eat. Ive been mostly living on rice, veggies, and bananas blended with protein smoothies. 
if I get up too quickly I have vertigo and nearly fall over. I’m a nanny and it’s been seriously difficult doing my job. I’d have quit by now if I was in a business with other workers, but I’m the sole provider and feel too guilty.
I finally did some more blood tests yesterday and got results. My hemocratit is bordering low and ferritin levels are very low. However, i also had iron and iron binding come back in normal levels. I don’t understand if I am anemic or not and if I should start taking a supplement.
I’m extremely stressed out over how sick I’ve been feeling. Has anyone else here had iron deficiency anemia and if so, what were your symptoms? I know we are all different and I can’t compare.  
I’m just feeling really alone and anxious about my body right now. Haven’t been this sick since before I was diagnosed with celiac disease years ago.  I’ve been passed around from doctor to doctor the last month and it hasn’t been a lot of help for me so far. 
Plus, it’s hard for me to actually see them in person because my job interferes with their medical hours. I don’t know what to do. 

[Scott Adams]

If your "hemocratit is bordering low and ferritin levels are very low" it would not hurt to supplement with iron until the levels increase. I am not sure where you live, but it seems reasonable to take a supplement for a while and then get the levels re-checked in a few months.

Recovery is definitely possible, but it involves a combination of staying 100% gluten-free, identifying additional food intolerances, and addressing possible nutrient deficiencies. 

Low iron can cause many issues which are covered in this article:

 

[knitty kitty]

@Kurlykaitlyn,

So sorry you are still not feeling better.

Your symptoms "extremely fatigued, light headed, and nauseous" are typical symptoms of Thiamine deficiency, as are vertigo, sensorineural hearing loss, blurry vision, and bladder control problems.  Anorexia and gastrointestinal symptoms often accompany Thiamine deficiency.  

Thiamine is Vitamin B 1, a water soluble vitamin that can be depleted in less than a week when the body is faced with stressors such as an unexpected injury or illness (like a ruptured cyst), emotional trauma, or physical activity especially in excessive heat.  

Thiamine is needed throughout the body to provide energy and enzymes so organs can function properly.  Thiamine is needed in the development of blood cells and proper functioning of the blood system.  

Alteration in MDA, GSH level and hematological changes due to thiamine deficiency in Mus musculus

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6853013/

 

Thiamine is found in meats, liver, black beans, green peas, kale, and oranges.

Your current diet sounds like it does not contain sufficient thiamine to compensate for a thiamine deficiency.

A person can have subclinical thiamine deficiency for years.  Daily dietary thiamine can temporarily increase thiamine levels causing a reduction in symptoms.  But if dietary thiamine is not consistent, symptoms can return quickly.  People who eat a gluten free diet for a long time can develop thiamine insufficiency.  Most thiamine in the modern diet is from vitamin enrichment added to grain based products like wheat bread.  Since Celiacs don't eat wheat products, that source of thiamine is cut out. Because gluten free facsimile foods are not required to be enriched in the same manner as wheat products, it's wise to supplement with thiamine and other B vitamins and minerals.  

Benfotiamine (a form of thiamine) and a B Complex supplement, along with magnesium glycinate and Vitamin D should help immensely.

Benfotiamine is a form of thiamine that is especially helpful in gastrointestinal symptoms.  A minimum of 300 mg per day should be tried for a week.  If symptoms improve, benfotiamine should be continued for several months.  

 Thiamine and Benfotiamine are water soluble, nontoxic and harmless.  If a trial of 300 mg or more of Benfotiamine doesn't result in health improvements, no harm is done.  

It is extremely important to correct thiamine deficiency as early as possible to prevent worsening symptoms, permanent damage and possibly death.  

My medical doctors did not recognize thiamine deficiency symptoms when I had them.  Read my blogs for excerpts of my story with thiamine deficiency.  

Seriously, try the Benfotiamine.  Better to trial harmless benfotiamine than endure what I went through.  

Best wishes.