starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

[kopiq]

Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten.

starting to heal symptoms include:

(this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area.

good size (not abnormal) bowel movements once a day or every two days.

small dot size wart just fell off my finger that was there for years.

have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip)

Ongoing issues

I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all.

I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it.

pins needles in feet

get weak legs standing up from sitting and dizzy, things almost turn black.

i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach.

the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat.

broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach.

fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer.

salt and pepper burns my stomach.

all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day.

I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.)

how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no.

why cant i stand the heat from the sun ? why cant i sweat?

thanks for any info.

[kopiq]

I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats.

I urinate about 15 times a day and have very sticky snot,dry throat.

[Scott Adams]

You’re already making significant strides toward healing, which is great to see. It's not uncommon to experience persistent or new symptoms during the early stages of a gluten-free diet, especially since full healing can take time and other underlying issues might still need addressing. Here are some thoughts and suggestions based on what you've shared:

Regarding Your Current Symptoms:

1. Sweating Issues and Heat Intolerance: These might be linked to autonomic nervous system dysfunction, which can occur with celiac disease. You may want to discuss testing for conditions like dysautonomia or neuropathy with your doctor.
2. Dry Skin and Cracked Hands: This can sometimes result from vitamin deficiencies, especially A, E, or zinc, common in untreated celiac disease. Your body's absorption should improve over time, but consider adding skin-friendly moisturizers or consulting a dermatologist for support.
3. Pins and Needles, Weakness, and Dizziness: These could be due to ongoing malabsorption of vitamins like B12, iron, or magnesium. Bloodwork for these deficiencies might provide clarity.
4. Food Sensitivities and Burning Sensations: Many with celiac initially experience heightened food sensitivities or stomach irritation. A low-FODMAP diet or similar temporary approach could help identify and reduce triggers while your gut heals.
5. Fat Malabsorption (Yellow Stools): This suggests your gut still isn’t absorbing fats properly. Pancreatic insufficiency or small intestinal bacterial overgrowth (SIBO) might play a role. Ask your GI about testing for these.
6. Frequent Urination and Sticky Mucus: These could indicate dehydration or another metabolic imbalance. Ensure you're staying hydrated and consider asking about possible thyroid or blood sugar issues.

Vitamin and Nutrient Intake:

If oral supplements upset your stomach, here are some alternatives:

• Sublingual or liquid vitamins (especially B12 and D): These are absorbed under the tongue and bypass the gut.
• Vitamin Injections: Ask your doctor if a short course of injections could address deficiencies like vitamin D or B12.
• Bone Broth: It can provide nutrients like collagen and minerals while being gentle on the stomach.

Long-Term Diet Improvements:

Your current diet is understandably limited to avoid triggering symptoms, but diversification will help as your gut heals. Working with a registered dietitian who specializes in celiac disease could be invaluable to safely reintroduce foods and build a balanced diet.

Next Steps:

• Follow up with your GI about your ongoing symptoms and consider further testing (e.g., nutrient levels, SIBO, or pancreatic function).
• Ask your doctor about working with specialists, like a neurologist or endocrinologist, if symptoms like dizziness, sweating issues, or fatigue persist.
• Be patient with your body—healing can take months or even years for some. Keeping a symptom diary might help identify triggers and measure progress.

You're asking the right questions, and it's clear you're doing your best to manage your health. Keep advocating for yourself with your healthcare team, and don't hesitate to seek second opinions if you're not getting answers. Wishing you continued progress and healing!

[kopiq]

Thank you so much! 

[Celiac comments]

As Scott said, vitamin injections. I have been getting them for years now.