Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Avoid All Irritation Or The Intestines?


Mabiac

Recommended Posts

Mabiac Newbie

Does all irritation and inflammation of the small intestines destroy the villi for celiacs, or is it only gluten.

I mean....

Say I eat some spicey foods that disagree with my small intestines and irritate it.....will more villi be destroyed?

Will it lessen the healing time from the damage gluten has already done?

It seems that I've become lactose intolerance since I've been having my stomach problems from last year and milk products sometimes tend to rumble my abdomen and give me a bit of diarreah so I'm thinking it may be irriating my small intestines too.

Will that destroy the already fragile villi or slow the healing time?

I'm like "walking on egg shells" with every damn thing I eat now a days..lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Mabiac:

Welcome to the site. You have come to a good place. You will learn more from the good people here than you will from any other place.

To anwser your questions:

1: I you have been diognosised with Celiac D, you have Celiac and gluten will continue to distroy your villi, yes that will happen.

2. Spicey foods do not necessarity destroy your villi unless they have gluten contained in the spices.

(Although, if your system is damaged, spicey foods may irritate you compromised system).

3. Often when diognosed with Celicac, others find that they are often irritatated by diary as well in the beginning stages.

4. Ask as many question of us that you need to. We have all been there and done that.

There are no dumb questions here, just lots of people who have been through what you are gong though.

I would not have been where I am now without the help of these people here that have helped me so greatly. Don't feel shy about posting your concernes or questions. It is a scary sometimes. I have meet so many good friends here and I encourage you to stay with us and learn.

Read alot of posts here and you will learn so much. Good luck to you and post with questions as much as you need to. You will get answers to all your questions.

Keep with us, Lisa

Ursa Major Collaborator

Spices will not destroy the villi, but could slow the healing. Go easy on the spices for a while. About 80% of celiacs are initially intolerant to dairy as well as gluten, because the small intestine makes the enzyme that allows you to digest dairy, and it can't do that when damaged. Some people will be able to tolerate dairy again after being on the diet for about a year (some more, some less).

Not only gluten will destroy the villi, apparently, so will soy in people who are intolerant to it (I am intolerant to both soy and gluten).

Be wary of soy, many celiacs are intolerant to it as well.

Mabiac, just try and eat simple for a while, mostly foods naturally gluten free. With those you don't even have to worry.

In the meantime, rid your kitchen and bathroom of gluten. What I mean is, you need a new toaster if you eat gluten free breads, as it isn't possible to clean a toaster properly if you've used it for gluteny breads before. The same goes for wooden cutting boards and wooden spoons, plastic colanders (if you've used it for gluten noodles, you really can't get it cleaned properly and will contaminate your gluten-free noodles), scratched non-stick pots and pans (can't clean them properly).

Check your soap, shampoo, conditioner, lip balm, shaving cream (unless you use an electric razor) for hidden gluten (wheat germ oil, barley essence, whatever) and replace the ones that contain gluten with brands that don't.

Read ALL labels when shopping! It is amazing how many processed foods contain gluten. It is best and easiest to completely stay away from them. I hope you like to cook! :blink: (I don't, but I have to cook every meal for myself from scratch, too many intolerances)

Mabiac Newbie

Damn, I was wondering what happened to this thread!

I started another one in it's place thinking I may have deleted this one by accident, and THAT ONE seemed to have disappeared also.

Lisa

Thank you for the warm welcome.

Right now my suspicion of being gluten intolerant isn't so much scary as it's just frustrating trying to figure out where the hell this problem may have come from....lol.

Why is it so common yet so "unheard of"?

Ursula

Check your soap, shampoo, conditioner, lip balm, shaving cream (unless you use an electric razor) for hidden gluten (wheat germ oil, barley essence, whatever) and replace the ones that contain gluten with brands that don't.

You know what.

I thought it was just me until you mentioned "wheat germ oil".

I used a hair-care product who's main ingredient was WHEAT GERM OIL for about a month, before my intestinal intussuception.

Something told me to just throw it out, and started using gel.

But the weird part is I seemed to also have problems using "Zest" soap.

And I love Zest.

But after about a week of using it, I start getting "heartburn" problems, and I'm thinking perhaps it may be to acidic or have something in it I'm allergic to.

I'm glad I came to this site.

I got other things to share with you guys like how I had major problems with my dental fillings until I got them removed.

I can spend an entire day talking about that ordeal.

Ursa Major Collaborator

Hey, good for you for following your 'gut' instinct with the shampoo (pun intended)! I found that my shampoo caused me to have a terribly itchy scalp and rash. Since I've been using Dove shampoo and conditioner, and ivory soap, I am fine.

Buy yourself two books: "Dangerous Grains" by James Braly, and "Celiac Disease, a hidden epidemic", by Peter H. R. Green and Rory Jones. Those are fascinating reads and will answer almost all your questions. While I disagree with a few things in those books, they appear to be by far the best books out there on celiac disease.

To your questions: Doctors have been told for a long time that only people with the 'classic' symptoms of diarrhea, malnutrition and weight loss could possibly have celiac disease. Actually, those people are only the tip of the iceberg. It will likely still be a long time before doctors will get it. Medical schools are a huge problem, because they barely mention celiac disease at all for the most part. They are also still taught that celiac disease is very rare. So, they don't expect to see many cases and dismiss even the ones that are pretty obvious, diagnosing people with an easy diagnosis like irritable bowel syndrome (IBS), and sending them home with pills, instead of investigating what actually CAUSES the bowel to be irritated!

Mabiac Newbie

Ursula

To your questions: Doctors have been told for a long time that only people with the 'classic' symptoms of diarrhea, malnutrition and weight loss could possibly have celiac disease. Actually, those people are only the tip of the iceberg. It will likely still be a long time before doctors will get it. Medical schools are a huge problem, because they barely mention celiac disease at all for the most part. They are also still taught that celiac disease is very rare.

Yes, that's what threw me off.

I'm Black and overweight...plus my symptoms were constipation and not diarreah so I thought to myself I couldn't possible have Celiacs.

I didn't fit the profile.

But whether I actually have it or not, avoiding all gluten seems to get rid of the symptoms so it must atleast have something to do with the problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...