Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inconsistent Reactions


Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular

Okay, I've been gluten-free since January exept for one day, where I ate a Chinese dumpling and a spring roll with no discenable reaction. I was glad I didn't react, but with all my immune system goofiness, I'm not about to scarf down gluten, so I went right back to my gluten-free diet.

Tonight, my husband made a box of scalloped potatoes (he never cooks, I just had the kids swimming and was late and he was getting hungry). I assumed he'd checked the box; he assumed it was gluten-free (which of course it wasn't).

I only had a couple of mouthfuls (we were in a rush to get our oldest son to a recital), and didn't think about it until 5 hours later, when my tummy blew up like a balloon.

Why am I not reacting consistently? I must have had much more wheat in the dumpling, but didn't react at all. Two bites of scalloped potatoes, and I look like I'm 6 months pregnant. It doesn't make any sense! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

I wish I knew the answer. Sometimes I'll get a bad stomach ache before I finish my meal, sometimes several hours later, sometimes no stomach problems at all. I haven't been glutened for a long time now, but I really thought I had eaten something wrong last week, was expecting a problem, and it never came. In the past, I've had other non-digestive problems when eating gluten. It would much simpler if it would be consistent!

Ursa Major Collaborator

Sounds like maybe other intolerances as well. You react to other things (maybe corn?) differently. That's what happens to me.

I did a gluten challenge a week ago for four days, and didn't even get diarrhea. But I know that I have had no gluten since, in fact I fasted for 24 hours, and then ate all things made from scratch last night, no chance of cross contamination. NOW I have terrible diarrhea (started yesterday). I think it's a delayed reaction to the gluten a week ago! Pretty crazy. Consistent? No way! Predictable? Definitely not. Why do I react differently every time? I have no idea, but it's a fact of life, nothing I can do.

Anyway, you may want to test things like corn (there was likely corn in the scalloped potatoes, and a ton of other possible allergens).

ravenwoodglass Mentor
Sounds like maybe other intolerances as well. You react to other things (maybe corn?) differently. That's what happens to me.

I did a gluten challenge a week ago for four days, and didn't even get diarrhea. But I know that I have had no gluten since, in fact I fasted for 24 hours, and then ate all things made from scratch last night, no chance of cross contamination. NOW I have terrible diarrhea (started yesterday). I think it's a delayed reaction to the gluten a week ago! Pretty crazy. Consistent? No way! Predictable? Definitely not. Why do I react differently every time? I have no idea, but it's a fact of life, nothing I can do.

Anyway, you may want to test things like corn (there was likely corn in the scalloped potatoes, and a ton of other possible allergens).

This is really not unusual. Gluten is an intolerance and depending on how quickly 'things move' will often take a few days to show up. When my allergist guided me with the elimination diet he took great pains to explain this delay because I was questioning why I had to wait a full week between adding items. I agree completely with checking for other intolerances also. I have found I am sensitive to the nightshades and am in the process of ruling out soy now. Seems they put soy in almost all processed foods. Sometimes I think my body is best off with just 'pure' unprocessed meats, veggies and fruits, but gee it would be nice to have a 'not really good for you' treat without the worry.

ms-sillyak-screwed Enthusiast
Okay, I've been gluten-free since January.......

........Tonight, my husband made a box of scalloped potatoes (he never cooks, I just had the kids swimming and was late and he was getting hungry). I assumed he'd checked the box; he assumed it was gluten-free (which of course it wasn't).

........Why am I not reacting consistently? I must have had much more wheat in the dumpling, but didn't react at all. Two bites of scalloped potatoes, and I look like I'm 6 months pregnant. It doesn't make any sense! :angry:

Sometimes w/ celiac disease you can have a problem with dairy and other things too. I do. For me dairy issues w/bloating (and pain) and gas are my symptoms also. Scalloped potatoes are cheese dairy and the thickening agent. The later could have been the problem cause it to be worse. Have you had a reaction to cheese and dairy before? Or corn? Mint tea helps me with the bloating.

I keep a food & body journal. Very important. It really helps me understand why I feel bad, and why. And I've been working with, believe-it-or-not, my chiropractor and he's helping my digestive system get better. He is changing patterns I have formed. But journal what you eat -- and what your -- stool is like. I know, I had a hard time typing the word. But you will get answers to what foods work and what foods don't.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      9

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    3. - Tobo replied to HectorConvector's topic in Related Issues & Disorders
      333

      Terrible Neurological Symptoms

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,728
    • Most Online (within 30 mins)
      7,748

    Denver Peg
    Newest Member
    Denver Peg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
    • jenniber
      yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
    • Tobo
      I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that was also diagnosed for nerve pain. I said no as I didn't want the stigma of being on antidepressants. Seven years later I begged my GP to prescribe them and my life was changed almost immediately. If I'm glutened accidentally whilst eating out then my nerves pain/symptoms get worse but it's nothing compared to taking the medication and feeling a little drowsy every now and then.  The best of luck for the future.
    • trents
      @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.