Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Inconsistent Reactions


Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular

Okay, I've been gluten-free since January exept for one day, where I ate a Chinese dumpling and a spring roll with no discenable reaction. I was glad I didn't react, but with all my immune system goofiness, I'm not about to scarf down gluten, so I went right back to my gluten-free diet.

Tonight, my husband made a box of scalloped potatoes (he never cooks, I just had the kids swimming and was late and he was getting hungry). I assumed he'd checked the box; he assumed it was gluten-free (which of course it wasn't).

I only had a couple of mouthfuls (we were in a rush to get our oldest son to a recital), and didn't think about it until 5 hours later, when my tummy blew up like a balloon.

Why am I not reacting consistently? I must have had much more wheat in the dumpling, but didn't react at all. Two bites of scalloped potatoes, and I look like I'm 6 months pregnant. It doesn't make any sense! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

I wish I knew the answer. Sometimes I'll get a bad stomach ache before I finish my meal, sometimes several hours later, sometimes no stomach problems at all. I haven't been glutened for a long time now, but I really thought I had eaten something wrong last week, was expecting a problem, and it never came. In the past, I've had other non-digestive problems when eating gluten. It would much simpler if it would be consistent!

Ursa Major Collaborator

Sounds like maybe other intolerances as well. You react to other things (maybe corn?) differently. That's what happens to me.

I did a gluten challenge a week ago for four days, and didn't even get diarrhea. But I know that I have had no gluten since, in fact I fasted for 24 hours, and then ate all things made from scratch last night, no chance of cross contamination. NOW I have terrible diarrhea (started yesterday). I think it's a delayed reaction to the gluten a week ago! Pretty crazy. Consistent? No way! Predictable? Definitely not. Why do I react differently every time? I have no idea, but it's a fact of life, nothing I can do.

Anyway, you may want to test things like corn (there was likely corn in the scalloped potatoes, and a ton of other possible allergens).

ravenwoodglass Mentor
Sounds like maybe other intolerances as well. You react to other things (maybe corn?) differently. That's what happens to me.

I did a gluten challenge a week ago for four days, and didn't even get diarrhea. But I know that I have had no gluten since, in fact I fasted for 24 hours, and then ate all things made from scratch last night, no chance of cross contamination. NOW I have terrible diarrhea (started yesterday). I think it's a delayed reaction to the gluten a week ago! Pretty crazy. Consistent? No way! Predictable? Definitely not. Why do I react differently every time? I have no idea, but it's a fact of life, nothing I can do.

Anyway, you may want to test things like corn (there was likely corn in the scalloped potatoes, and a ton of other possible allergens).

This is really not unusual. Gluten is an intolerance and depending on how quickly 'things move' will often take a few days to show up. When my allergist guided me with the elimination diet he took great pains to explain this delay because I was questioning why I had to wait a full week between adding items. I agree completely with checking for other intolerances also. I have found I am sensitive to the nightshades and am in the process of ruling out soy now. Seems they put soy in almost all processed foods. Sometimes I think my body is best off with just 'pure' unprocessed meats, veggies and fruits, but gee it would be nice to have a 'not really good for you' treat without the worry.

ms-sillyak-screwed Enthusiast
Okay, I've been gluten-free since January.......

........Tonight, my husband made a box of scalloped potatoes (he never cooks, I just had the kids swimming and was late and he was getting hungry). I assumed he'd checked the box; he assumed it was gluten-free (which of course it wasn't).

........Why am I not reacting consistently? I must have had much more wheat in the dumpling, but didn't react at all. Two bites of scalloped potatoes, and I look like I'm 6 months pregnant. It doesn't make any sense! :angry:

Sometimes w/ celiac disease you can have a problem with dairy and other things too. I do. For me dairy issues w/bloating (and pain) and gas are my symptoms also. Scalloped potatoes are cheese dairy and the thickening agent. The later could have been the problem cause it to be worse. Have you had a reaction to cheese and dairy before? Or corn? Mint tea helps me with the bloating.

I keep a food & body journal. Very important. It really helps me understand why I feel bad, and why. And I've been working with, believe-it-or-not, my chiropractor and he's helping my digestive system get better. He is changing patterns I have formed. But journal what you eat -- and what your -- stool is like. I know, I had a hard time typing the word. But you will get answers to what foods work and what foods don't.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...