Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups Needed!


mom of 5 celiac

Recommended Posts

Guest jhmom

Thank you both for the information. I think I may just plan on attending both meetings since they do not conflict with each other, hey I need all the support I can get right now..... :rolleyes:

Karen, I hope you are feeling better and continue to do so :D and if you don't mind go ahead and send me the directions to the GW meeting too. Thank you!

Link to comment
Share on other sites
  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mom of 5 celiac Rookie

Stacie and Ann,

The support meeting at Gwinnett Medical Center is this Sat. March 13th in the Educational department.

As far as I can tell the meeting starts at 10:00. It said if there is a pot luck it will start at 11:00.

But I don't see anywhere that is says pot luck. So I am going at 10:00. I hope you tow can make it.

I know it is a long way but I will try to give you directions. I tried to email the person for Cobb and they never emailed me back.

Take 75 South to 85 north. Then look for 316 toward lawrenceville and take it to the

exit that says Hwy 120. (There will probably be those blue hospital signs too). When you get off the ramp take a left

and you will see the entrance for the hospital (Gwinnett Medical Center) on your right. As soon as you go in the front door

there will be a foyer and I think the education part of the building is to the right. Not to sure but I am sure there will be

someone there to tell us. They do charge you for parking. Hope to see you guys there. Karen :D

Link to comment
Share on other sites
Guest jhmom

Karen:

Thank you for the directions. I think I have someones email address to contact for the meeting I will ask if it's a pot luck or not and will let you guys know.

Look forward to meeting you guys too!!! :D

Link to comment
Share on other sites
Guest jhmom

I received this email from the GSSG MEETING REMINDER. I do not know if I will make this meeting or not, I may wait until the one in May which I think will be the pot luck. I sent them my mailing address so that they can send me the information, I will let you know.

Gluten Sensitive Support Group Meeting

Saturday, March 13, 2004

2:30 - 4:30 p.m.

W Hotel at Perimeter Center

111 Perimeter Center West

"Celiac Explosion:  Changes in Attitudes

Across the Country"

Speaker:  Cynthia Kupper, RD, celiac disease

Executive Director

Gluten Intolerance Group, Seattle, WA

NOTE:  WHEN YOU REACH THE HOTEL, LOOK FOR DIRECTIONS

TO THE ATLANTA WOMEN'S MEDICAL ALLIANCE MEETING.

Link to comment
Share on other sites
mom of 5 celiac Rookie

Stacie,

I am confused about the meetings. The reminder you just sent me was it for the one that is suppose to be at Gwinnett Medical Center or is this a different one but on the smae day? I website said they were held at the Medical Center. Let me know. I will probably go so I will see you at the May meeting. Thanks. Karen

Link to comment
Share on other sites
Guest jhmom

Karen:

Yes they are usually held at the Gwinnett Medical Center but they have an opportunity to hear Cynthia Kupper, RD, celiac disease speak. The website has not been updated recently but the lady I spoke with assured me they were working on it and in the mean time if you email her and give her your mailing address they will send you the info on the meetings and pot luck. Her email is jmfierjr@aol.com (thanks Kim for posting it)

Did anyone ever get the info on the Cobb meetings?

Link to comment
Share on other sites
mom of 5 celiac Rookie

Hey Stacie,

Thanks and I will email her. Not sure if I will make that one yet. I will let you know if

I go and tell you all about it. My husband has a swim team meeting at the same time

and so I don't think he can make it. Karen

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kim Explorer

Hi everyone. Sorry I wasn't on for a while. The Gwinnett meeting is NOT is Gwinnett in March -- just this one time.

The Cobb Meeting will be April 24, and I'll post the information as soon as I have it.

Hope to meet you all on Saturday.

Kim.

Link to comment
Share on other sites
mom of 5 celiac Rookie

Kim and Stacie,

I didn't get to go on Sat. I wasn't sure where it was being held and I don't know that part of town and I didn't want to get lost. So, I may come to the Cobb one in April.

Please send the information to me Kim. Did you go on Sat? IF so, how was it? I have never been to a group. Talk to you all later. Karen

Link to comment
Share on other sites
mamarara Newbie

Hi I was just wondering if anyone out there knows of any support groups in the Boston MA area.

Link to comment
Share on other sites
Guest jhmom

Hi, I responded to your other post and included the support group link there.... but here it is again... :D

Click Here

Link to comment
Share on other sites
Kim Explorer

Hi Karen. Sorry you couldn't make it. I was there and it was good. Dr. Rudert is speaking on Thursday March 25 from 12:30 to 1:30 pm in the Richard H. Rich Auditorium in the 77 Building of Piedmont Hospital. The lecture is open to the public and the topic is: The Medical and Nutritional Implications of Celiac Disease.

I'm not sure if I'll be able to make that one, but thought I'd pass along the information.

the April 24 meeting of the Cobb Group will be at PF Chang's near Perimeter Mall -- I'll get the time and address later and post when I have it.

Kim.

Link to comment
Share on other sites
mom of 5 celiac Rookie

Kim,

Thanks for the information. I am going to try to make it. I really want to hear her

speak. Let me know about the Cobb meeting. Karen

Link to comment
Share on other sites
  • 1 month later...
chawk310 Apprentice

A new adult support group was started in Jan of this year. It is held in Cobb Co at a church on Johnson Ferry Road in Marietta. The contact person is Markee Jones at markee@mindspring.com.

On another note, a children's support group is being started. An informal get together is planned at Wills Park in Alpharetta, GA on Sunday, May 23, from 2 - 4. I am very excited about this because I have a 4 y/o son who was diagnosed 12/03. I can't wait for him to meet other kids in the same situation.

Hope all of this information helps.

Link to comment
Share on other sites
  • 1 year later...
Kailynsmom Apprentice

Hi My name is Melissa and my daughter, 2 years, is currently undergoing the testing for celiac. I am so confused, know very little and am not sure where to start. Anyone out there have any advice?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,198
    • Most Online (within 30 mins)
      7,748

    DocTMyrz
    Newest Member
    DocTMyrz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @MO1984, I have dermatitis herpetiformis, too.  I've learned that glutamate can make dermatitis herpetiformis worse.  Some foods like mushrooms can contain high levels of glutamate.  Coffee and caffeine cause increased production of glutamate.   Glutamate is a helpful excitatory neurotransmitter that our bodies can make.  It helps wake us up in the morning.  It keeps us alert when under stress.  But too much can cause insomnia.  And too much glutamate can cause the antibodies associated with dermatitis herpetiformis (tTg 3) to become more active and deposit in the skin.   dermatitis herpetiformis is pressure sensitive.  dermatitis herpetiformis eruptions occur where there's pressure on the skin, like in the crotch where the skin folds together, under elastic bands in underwear, and along seams of clothing.   Wearing loose clothing made of natural fibers helps immensely.   Hope this helps!
    • Jennie6308
      Hi, I know this was posted earlier this year, but Quest labs just types you .. as in it just gives you your two A and two B alleles.   I came back positive for Celiac - DQ2.5 and positive for DQ7 which is getting some notice lately.  I'm also positive blood work, deficiencies, symptoms, mom has Celiac, etc... hope that helps if you're still looking.  You can order the test direct through Quest
    • trents
      One small study I read recently found that half of the celiacs in the study experienced small bowel villous inflammation from CMP (Cow's Milk Protein). 
    • trents
    • Chloe Senora
      It’s interesting that you say this. I’ve been constipated all my life, fatigued since I got my first period, severely anemic for 2 and a half years, low vitamin D. But it wasn’t until after I got food poisoning a couple weeks ago, that I have not had a normal bowel movement since. And my drs told me to eat a lot of gluten because they want to test me for celiac, primarily because of the anemia and chronically low ferritin. Ferritin is supposed to be 14 but ideally 50-146. 2 and a half years ago it was 3.7, then 7.3, then 10.3, but now it’s 5. And a year ago I got on birth control so I don’t even get a period anymore. Almost all of my current health issues (much more than just celiac) either started or became a lot worse after I got Covid 2 years ago. If anyone has any tips for me it’d be greatly appreciated. Waiting on my blood test results, should get them in a day or 2. 
×
×
  • Create New...