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Support Groups Needed!

mom of 5 celiac

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Guest jhmom
Guest jhmom
Posted

Thank you both for the information. I think I may just plan on attending both meetings since they do not conflict with each other, hey I need all the support I can get right now..... :rolleyes:

Karen, I hope you are feeling better and continue to do so :D and if you don't mind go ahead and send me the directions to the GW meeting too. Thank you!

  • 2 weeks later...
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mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Stacie and Ann,

The support meeting at Gwinnett Medical Center is this Sat. March 13th in the Educational department.

As far as I can tell the meeting starts at 10:00. It said if there is a pot luck it will start at 11:00.

But I don't see anywhere that is says pot luck. So I am going at 10:00. I hope you tow can make it.

I know it is a long way but I will try to give you directions. I tried to email the person for Cobb and they never emailed me back.

Take 75 South to 85 north. Then look for 316 toward lawrenceville and take it to the

exit that says Hwy 120. (There will probably be those blue hospital signs too). When you get off the ramp take a left

and you will see the entrance for the hospital (Gwinnett Medical Center) on your right. As soon as you go in the front door

there will be a foyer and I think the education part of the building is to the right. Not to sure but I am sure there will be

someone there to tell us. They do charge you for parking. Hope to see you guys there. Karen :D

Guest jhmom
Guest jhmom
Posted

Karen:

Thank you for the directions. I think I have someones email address to contact for the meeting I will ask if it's a pot luck or not and will let you guys know.

Look forward to meeting you guys too!!! :D

Guest jhmom
Guest jhmom
Posted

I received this email from the GSSG MEETING REMINDER. I do not know if I will make this meeting or not, I may wait until the one in May which I think will be the pot luck. I sent them my mailing address so that they can send me the information, I will let you know.

Gluten Sensitive Support Group Meeting

Saturday, March 13, 2004

2:30 - 4:30 p.m.

W Hotel at Perimeter Center

111 Perimeter Center West

"Celiac Explosion:  Changes in Attitudes

Across the Country"

Speaker:  Cynthia Kupper, RD, celiac disease

Executive Director

Gluten Intolerance Group, Seattle, WA

NOTE:  WHEN YOU REACH THE HOTEL, LOOK FOR DIRECTIONS

TO THE ATLANTA WOMEN'S MEDICAL ALLIANCE MEETING.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Stacie,

I am confused about the meetings. The reminder you just sent me was it for the one that is suppose to be at Gwinnett Medical Center or is this a different one but on the smae day? I website said they were held at the Medical Center. Let me know. I will probably go so I will see you at the May meeting. Thanks. Karen

Guest jhmom
Guest jhmom
Posted

Karen:

Yes they are usually held at the Gwinnett Medical Center but they have an opportunity to hear Cynthia Kupper, RD, celiac disease speak. The website has not been updated recently but the lady I spoke with assured me they were working on it and in the mean time if you email her and give her your mailing address they will send you the info on the meetings and pot luck. Her email is jmfierjr@aol.com (thanks Kim for posting it)

Did anyone ever get the info on the Cobb meetings?

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Hey Stacie,

Thanks and I will email her. Not sure if I will make that one yet. I will let you know if

I go and tell you all about it. My husband has a swim team meeting at the same time

and so I don't think he can make it. Karen

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Kim Explorer
Kim
Posted

Hi everyone. Sorry I wasn't on for a while. The Gwinnett meeting is NOT is Gwinnett in March -- just this one time.

The Cobb Meeting will be April 24, and I'll post the information as soon as I have it.

Hope to meet you all on Saturday.

Kim.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Kim and Stacie,

I didn't get to go on Sat. I wasn't sure where it was being held and I don't know that part of town and I didn't want to get lost. So, I may come to the Cobb one in April.

Please send the information to me Kim. Did you go on Sat? IF so, how was it? I have never been to a group. Talk to you all later. Karen

mamarara Newbie
mamarara
Posted

Hi I was just wondering if anyone out there knows of any support groups in the Boston MA area.

Guest jhmom
Guest jhmom
Posted

Hi, I responded to your other post and included the support group link there.... but here it is again... :D

Click Here

Kim Explorer
Kim
Posted

Hi Karen. Sorry you couldn't make it. I was there and it was good. Dr. Rudert is speaking on Thursday March 25 from 12:30 to 1:30 pm in the Richard H. Rich Auditorium in the 77 Building of Piedmont Hospital. The lecture is open to the public and the topic is: The Medical and Nutritional Implications of Celiac Disease.

I'm not sure if I'll be able to make that one, but thought I'd pass along the information.

the April 24 meeting of the Cobb Group will be at PF Chang's near Perimeter Mall -- I'll get the time and address later and post when I have it.

Kim.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Kim,

Thanks for the information. I am going to try to make it. I really want to hear her

speak. Let me know about the Cobb meeting. Karen

  • 1 month later...
chawk310 Apprentice
chawk310
Posted

A new adult support group was started in Jan of this year. It is held in Cobb Co at a church on Johnson Ferry Road in Marietta. The contact person is Markee Jones at markee@mindspring.com.

On another note, a children's support group is being started. An informal get together is planned at Wills Park in Alpharetta, GA on Sunday, May 23, from 2 - 4. I am very excited about this because I have a 4 y/o son who was diagnosed 12/03. I can't wait for him to meet other kids in the same situation.

Hope all of this information helps.

  • 1 year later...
Kailynsmom Apprentice
Kailynsmom
Posted

Hi My name is Melissa and my daughter, 2 years, is currently undergoing the testing for celiac. I am so confused, know very little and am not sure where to start. Anyone out there have any advice?

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      iron digestibility

      By knitty kitty · Posted

      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
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