Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Casein

majicbunnies

Recommended Posts

majicbunnies Contributor
majicbunnies
Posted

If you're intolerant to casein, what do you look for on lables to know if casein is in the food? I've never seen casein, so is it hidden or under another name?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Well, if it says something like 'milk ingredients' or 'modified milk ingredients', or skim milk powder, or really anything that says 'milk' or 'dairy'. I am not sure it actually ever says 'casein'. And you avoid anything you KNOW is made from milk, like any kind of cheese, yogourt, milk, butter (except for ghee, it is safe I believe), cream etc. And that should cover it (well, it won't be easy, but that's another thing).

Carriefaith Enthusiast
Carriefaith
Posted

Double check ingredients on popcorn, chips, candy, margerine, gluten-free products, hot dogs, salad dressings, wine ect.

Also stay away from whey.

psawyer Proficient
psawyer
Posted

Casein can appear in products as sodium caseinate. Examples include some coffee creamers such as Coffee Mate. I believe under the new US labelling law the work "milk" must now also appear on products in the US.

majicbunnies Contributor
majicbunnies
Posted
  • Author

ok thanks. I really hope I'm not allergic to casein. I'd be more limited and eating would be twice as hard. =(

Green12 Enthusiast
Green12
Posted

We need tarnalberry, I think it was her, she posted an awsome link some time back that listed everything casein was in, the obvious and not so obvious- and I forgot to bookmark it :(

Mia H Explorer
Mia H
Posted

Open Original Shared Link

This is a site I found that has lots of the hidden names.

Yes, going cf is very hard! I'm one month in and still miss it a lot. But I'm feeling better so I am motivated to keep on. I was tested with enterolab and found to be gluten/casein intolerant.

I was happy to find clarified butter (ghee) at the healthfood store is cf. I couldn't live without butter!

Mia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted
Open Original Shared Link

This is a site I found that has lots of the hidden names.

Yes, going cf is very hard! I'm one month in and still miss it a lot. But I'm feeling better so I am motivated to keep on. I was tested with enterolab and found to be gluten/casein intolerant.

I was happy to find clarified butter (ghee) at the healthfood store is cf. I couldn't live without butter!

Mia

Thanks Mia for this link :)

majicbunnies Contributor
majicbunnies
Posted
  • Author
Open Original Shared Link

This is a site I found that has lots of the hidden names.

Yes, going cf is very hard! I'm one month in and still miss it a lot. But I'm feeling better so I am motivated to keep on. I was tested with enterolab and found to be gluten/casein intolerant.

I was happy to find clarified butter (ghee) at the healthfood store is cf. I couldn't live without butter!

Mia

What is enterolab????

tarnalberry Community Regular
tarnalberry
Posted

that's a good list - and with the allergen labeling laws, you'll start seeing it listed more plainly.

going CF, I think, is more difficult than gluten-free - primarily because I like yogurt and cheese more, and there are not decent substitutions. (soy yogurt's not the same, and I don't like having too much soy.) but you can do it so long as you choose to.

Mia H Explorer
Mia H
Posted
What is enterolab????

Enterolab (www.enterolab.com) is a site that you can send a stool sample and mouth swab to and they can tell you if you are having an autoimmune response to certain foods, or if you carry the main celiac genes. It can help you find out if you are celiac or gluten, casein intolerant and other foods.

Many people on this site have used it and this site is where I found out about it.

Mia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Mimiof2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      EDG 3 years ago fine, now it shows focal villous blunting,

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"
    2. Scott Adams
      0

      Woman Refuses to Share Gluten-Free Cake—And Sparks a Bigger Conversation

    3. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      My dad had an Abdominal Aortic Aneurysm. Fortunately, it was discovered during an exam. The doctor could feel my dad's heart beating in his stomach/abdomen. The aneurysm burst when the doctor first touched it in surgery. Since he was already hooked up to the bypass machine, my dad survived ten more years. Close call! Triple A's can press on the...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and...
    5. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,074
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
×
×
  • Create New...