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Dh Questions

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Are the photos in the link being provided to us newbies typical or extreme cases of DH? It sounds like everyone presents in different ways? I have a rash on the inside of my forearms. It starts with small pimples that become rash like. It then becomes dry and the pimples scab over. Could it be DH? Does DH itch, burn and sting when you sweat? This rash does and becomes worse.


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I think that everyone's reaction is unique. Although DH also typically includes oozing blisters - not just bumps. But you never know. Mine were pretty ugly - and excrutiatingly itchy - but did not look as bad as most of the picture on the internet. One thing that also seems typical is that it is a symettrical condition - if you have it one arm, you have it on the other, etc.


- Dx by Derm with DH in Oct 2005 - both by bloodwork and skin biopsy.

- Dx with celiac disease in Nov 2005 by biopsy of small intestine.

- gluten-free since Oct 2005

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I would get up to 10 on my abdomen over a 2 day period and they would last for about a week, clear up, and then come back again. They were tiny, with an extremely itchy oozing blister that would crust over and then ooze again for a couple of days. The top would come off extremely easy.

I also would get a few on my scalp that were extremely itchy, but not did not ooze.

I was 100% gluten free after my daughter went to college, but recently I have been eating out and I am finding now that I will get 1 or 2 now with cross contamination. This is new to me, so I hope this is it.

Hope this helps. Marcia

Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

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