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Celiac's & Eating

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When I went to see my Celiac Specialist in Iowa City, he told me I was doing fine, as well as he expected. That was after having celiac for a year. I still felt like crap, was unable to stay awake, unable to keep my food down & he was telling me I was doing OK? Whats wrong with this picture??

I have tried 4 different stimulants as I can sleep for 12 hours each night, but after I get up in the morning, there is nothing that will keep me up during the day. I can go back to bed & sleep the rest of the day. I can't stay awake no matter how hard I try.

I'm supposed to eat 6 small meals a day, if I can't stay awake, how can I eat? I only have 1/4 of a stomach, due to previous stomach surgery I had to have. I had bleeding ulcers and they removed 3/4 of my stomach. I was told this was the only thing that would fix the problem. Now, I find out that the ulcer surgery should never have been performed, but, its too late to worry about that now. I'm just stuck with 1/4 of a stomach that is paralized. I'm never hungry, so have to force myself to eat 6 meals a day or die.

Does anyone else have any problems with the extreme fatigue or with not wanting to eat, having to force yourself to eat??




phone-515-298-0017 (cell)

515-432-3230 (home)

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Celiac.com Sponsor (A8):

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Joy, switch doctors, this one is clueless.

Welcome to this board!

First of all, you probably have other intolerances, unless you're not 100% gluten-free. You probably need to eliminate all dairy as well as gluten.

Have you had your thyroid checked? Your iron and vitamins? Lots of things could be wrong. You may be suffering from anemia, adrenal fatigue, low thyroid, vitamin deficiencies, or, most likely, all of those!

See a regular GP and have testing done. Also, you might want to try allergy testing, or an elimination diet.

I hope you figure it out. I am glad you are not listening to your GI, and trying to find answers.

Oh, and don't post your personal info like phone numbers in a public forum! That is not safe.

I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma


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Have you had a sleep study done? They are irritating and quite un-fun, but it's worth a shot. I have obstructive sleep apnea as well which was discovered first.

I would do the blood tests first (as they are less suckey), but if ur sleeping that much it could give u some answers (if nothing else does).

Just thought I'd throw that out there.

Hope u find some answers!!


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